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Recent Episodes
Living with Spinal Muscular Atrophy: Genetic Testing, Therapy, and More
Andrew Cherico, a student at the University of Central Florida, Orlando, FL, discusses his experience living with spinal muscular atrophy (SMA), the impacts of available treatments, and how the…
Emma’s Journey: A Mother’s Hope in the Face of Dravet Syndrome
In this episode, Nicole Watson shares her daughter Emma’s powerful journey living with Dravet syndrome, a rare and severe form of epilepsy. From the early days of uncertainty and searching for…
Learning, Laughing, and Living with Multiple Sclerosis
Ardra Shephard, a musician, author, fashion-show TV host, podcaster, and MS advocate, discusses her experiences living with MS, including how she uses her story to educate and encourage others living…
Parkinson Disease Therapy: Lifestyle Interventions to Optimize Care
Lisa Volenec, a patient advocate and General Manager of KMTV, Omaha, NE, shares how incorporating lifestyle modifications—such as diet, exercise, and community engagement—has enhanced her Parkinson…
Redefining the Doctor-Patient Partnership: What a Physician-Patient Can Teach Us About Parkinson Disease Care
How can neurologists partner with their patients living with Parkinson disease? Kathleen Blake, MD, MPH, Santa Fe, NM, Vice Chair of the Parkinson's Foundation People with Parkinson’s Advisory…
Mastering Migraine
Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C.…
The Importance of Early Diagnosis and Treatment of Alzheimer Disease
Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis…
Rehabilitation after Traumatic Brain Injury (TBI)
After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance…
Redefining Life with Friedreich Ataxia
We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia…
Young-Onset ALS: Diagnosis and Research
In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial…
Rett Syndrome: Magnolia and Her Family's Experience.
AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for…
PD GENEration and Barriers to Parkinson Diagnosis - Part 2
Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a…
PD GENEration and Barriers to Parkinson Diagnosis - Part 1
Chantale Branson, MD, Associate Professor of Neurology at Morehouse School of Medicine, Atlanta, GA, is a researcher working on the pivotal PD GENEration study, which aims to improve treatment…
The Influence of Family Health History on the Diagnosis of hATTR Amyloidosis
Bernice Bennett, genealogist, health education specialist, and co-founder and faculty member of the Midwest African American Genealogy Institute, discusses the Family Health History Road Trip, which…
Beyond Brain Injury
Elisabeth Beraquit, a Philadelphian, CPA, and former bakery owner, recounts her painstaking journey of recovery from a traumatic brain injury due to a 30 foot fall.
Surviving Stroke: 2 Surgeons Experience with Recovery
Siva Murugappan, MD, General Surgeon, Chatham-Kent Health Alliance, Ontario, Canada, shares his own experiences as a patient recovering from an ischemic stroke. He is joined by his wife and…
Ping Pong and Parkinson Disease
PingPongParkinson founder, Nenad Bach, discusses why he started PingPong Parkinson. He is joined by Gabe Elkinson and Ryan Dong, two high school students who started a PingPongParkinson chapter in…
Epilepsy Caregiving
Caregivers play an important part in the patient journey, especially with conditions such as epilepsy. Actor and podcast host of "Talk About It!" Greg Grunberg discusses how caregivers can educate…
SMA Experience: Episode 2
Neuromusclar disease expert Diana Bharucha-Goebel, MD, PhD chats with Traci High, mother of two patients with SMA about how the SMA treatment landscape, and her childens' lives, have changed over the…
SMA Experience: Episode 1
Neuromuscular disease expert Charlotte Sumner, MD chats with her patient Nicole Moore about some of her life goals and how recent treatment options have changed the conversations between them.
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Amplifying the Patient Journey has published 20 episodes since November 2023, covering topics in Life Sciences, Science.
Amplifying the Patient Journey is currently active with new episodes monthly. Average episode length is 23m.
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