#BeyondHAE Youth Produced Podcast
US Hereditary Angioedema Association
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Recent Episodes
S6E3 Voices of the Next Generation: #BeyondHAE
In this episode, we meet Ivy, Sadie, and Kayla, three new members of the HAEA Youth Leadership Council, as they share their personal journeys living with hereditary angioedema (HAE). They open up…
S6E2 #BeyondHAE Podcast: Advocating for Rare Disease on Capitol Hill
In this special youth-produced episode of the #BeyondHAE Podcast, we hear directly from young leaders in the HAE community who took part in the 2026 EveryLife Foundation’s Rare Disease Week on…
S6E1 #BeyondHAE Podcast: Moments That Mattered: HAEA Youth on 2025 and Beyond
In this episode of the #BeyondHAE Podcast, host Kobe sits down with HAEA Youth Leadership Council members Sophia, Cassidy, and Zach for an engaging and inspiring conversation. Together, they reflect…
S5E12 #BeyondHAE: High-Fiving Palm Trees
In this episode of the #BeyondHAE podcast, host Zach shares his powerful journey growing up with Hereditary Angioedema (HAE). His story chronicles his experience dealing with an especially…
S5E11 #BeyondHAE Podcast: Advocating for Yourself As You Transition into College
In this inspiring episode of the #BeyondHAE Podcast, HAEA Youth member Ally takes the mic to share an exciting update on the newly revamped HAEA College Transition Guide, designed to support students…
S5E10 #BeyondHAE Podcast: A Family’s Journey with HAE
In this episode of the #BeyondHAE podcast, host Ohm shares a deeply personal perspective on growing up with hereditary angioedema (HAE), first as a witness to his mother’s unexplained medical…
S5E9 #BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
In this special episode of the #BeyondHAE podcast, we hear from three passionate young advocates, Zach, Angel, and Arabel who took their voices to Capitol Hill during the EveryLife Foundation’s Rare…
S5E8 #BeyondHAE Podcast: A Letter to my 10 year old Self
As we step into March, we’re excited to bring you a brand-new episode of the #BeyondHAE youth-produced podcast! This episode is hosted by 18-year-old Luke, who was diagnosed with HAE at the age of 9,…
S5E7 #BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler
In this episode of the #BeyondHAE youth-produced podcast, we highlight two incredible young HAE caregivers, Tyler and Jason, who have been longtime members of the HAE community. As dedicated…
S5E6 #BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra
In this episode of the #BeyondHAE youth-produced podcast, we connect with Kaylee and Kiara, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Both Kaylee and Kiara…
S5E5 #BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
In this episode of the #BeyondHAE youth-produced podcast, we connect with Ella and Kati, two passionate advocates whose lives have been shaped by hereditary angioedema (HAE). Ella, a devoted…
S5E4 #BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar
In this episode of the #BeyondHAE youth produced podcast, we connect with Skylar and Cassidy, two remarkable individuals whose lives have been shaped by hereditary angioedema (HAE) in different ways.…
S5E3 #BeyondHAE: Meet 2024 Social Media Intern - Kailani
In this episode, we sit down with Kailani, a dedicated caregiver to her mother living with hereditary angioedema (HAE). Kailani shares her unique perspective on balancing caregiving responsibilities…
S5E2 #BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery
The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joined in 2024. Meet Caroline, who…
S5E1 #BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully
The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joined in 2024. This episode…
S4E7 #BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
In this episode of the #BeyondHAE podcast, HAEA Youth Leadership Council member Carlie chats with Youth Advocate Jasmeen about her personal journey with HAE. Diagnosed as a teenager, Jasmeen shares…
S4E1 #BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy
In this special Youth Advocacy Month episode, join host Kobe as they sit down with HAEA Youth Advocacy Network Regional Leaders, Ally and Luke, to discuss their impactful experiences as young…
S4E5 #BeyondHAE: A Day in the Life of Zach
In this episode of the #BeyondHAE podcast, hosted by Youth Leadership Council Member Noah, Zach shares his journey with HAE, which began when he attended his first HAEA event at the young age of 9.…
S4E1 #BeyondHAE Podcast: A Day in the Life of Sanyu
Check out the latest #BeyondHAE podcast episode hosted by Kobe, featuring special guest Sanyu! Diagnosed with HAE as a child, Sanyu shares the challenges she faced growing up with the condition, her…
S4E1 #BeyondHAE Podcast: A Day in the Life of Caregiver Kailani
Join us in the latest episode of the #BeyondHAE podcast, where Noah, an HAEA Youth Leader, engages in a heartfelt conversation with Kailani, a dedicated caregiver to her mother living with Hereditary…
Frequently Asked Questions
#BeyondHAE Youth Produced Podcast has published 75 episodes since November 2019, covering topics in Business, Non-Profit.
#BeyondHAE Youth Produced Podcast is currently highly active with new episodes every 2 months. Average episode length is 11m.
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