CURE SYNGAP1 PODCAST aka SYNGAP10

Syngap Research Fund, 501(c)(3)

English Business Health & Fitness Life Sciences Medicine Non-Profit

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Episodes 207

Avg. Duration 13m

Activity Highly Active

Since Mar 2021

Latest Episode May 2026

Outreach Signals

Has Video

Publishing Details

Schedule

Weekly

Format

Episodic

Consistency

49%

Hosting

feed.podbean.com

Contact & Outreach

About This Podcast

Over 1,600 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This weekly podcast is for them. -A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of CURE SYNGAP1. CURE SYNGAP1 is a parent-led public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://cureSYNGAP1.org

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Recent Episodes

Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e207

May 08, 2026 9m

Friday, May 8, 2026 - Week 19 CURE SYNGAP1 STRATEGY WORKING Our strategy has always been to derisk SYNGAP1 so that industry will invest and bring their skill and capital to bear. We leverage donor…

Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e206

May 06, 2026 9m

Wednesday, May 6, 2026 - Week 19 Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend.…

Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e205

Apr 21, 2026 9m

Monday, April 20, 2026 - Week 17 CURE SYNGAP1 joins the Haystack Project in petitioning FDA for more clarity. PR:…

Global Advocacy. #NL51. Snippets! #SYNGAPcensus = 1,761. UT Arlington & Cook Children’s. #S10e204

Apr 14, 2026 9m

Tuesday, April 14, 2026 - Week 16 Census is 1,761 https://curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761 Trip to Texas for UT Arlington and Cook Children's Systems innovation…

DSC-III and Data - CURE SYNGAP1 is working tirelessly to increase SYNGAP1 Knowledge #S10e203

Apr 04, 2026 9m

Friday, April 3, 2026 - Week 14 Just back from the DSC-III Kickoff Meeting! As announced back in September 2025. Really strong group of…

It is time to get ready for clinical trials, this is how. #S10e202

Mar 26, 2026 9m

Thursday, March 26, 2026 - Week 13 Thanks for NL50 Ed! cureSYNGAP1.org/NL50, I listened to Episode 1 and, as it turns out, it was March 12, 2021 (five 5️⃣ years ago), and it’s evergreen. SEVEN…

We need to raise funds for the critical work of CURE SYNGAP1, join us with #Sprint4SYNGAP #S10e201

Mar 06, 2026 9m

Friday, March 6, 2026 - Week 10 WHAT DO WE NEED $ FOR? I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants. All…

#RareDiseaseWeek! We are doing much beyond grants… too much. Get the Citizen Health App! #S10e200

Feb 25, 2026 9m

Wednesday, February 25, 2026 - Week 9 Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation! …

Support Clinical Trial Design for #SYNGAP1 via biobanks, EEGs and Fundraising. #S10e199

Feb 17, 2026 9m

Tuesday, February 17, 2026 - Week 8 We are flat out, thank you to the team who work full-time on SYNGAP1: VM KAH LP PP & KF. CLINICAL TRIAL DESIGN We are Angelman-like. (Rett also)…

All #SYNGAP1 Families need to take part in our Natural History Studies: ProMMiS & Citizen #S10e198

Feb 06, 2026 9m

Thursday, February 5, 2026 - Week 6 Happy #RareDisease & #BlackHistory Month! #NaturalHistory means how this disease progresses. Reminder: We have only been at this for 17 years, first…

Funding Priorities. Biorepository. Genetic Testing. How to move for a clinical trail! #S10e197 Monday, February 2, 2026 - Week 6

Feb 03, 2026 9m

All US Families, please take the time to fill out the ProMMiS Survey. It takes 5 minutes. It's super important. Even if you haven't been there, we need your feedback. English:…

Stoke Tx shows us that ASO Clinical Development is accelerating. #S10e196

Jan 16, 2026 9m

Friday, January 16, 2026 - Week 3 Stoke Phase 3 Rapid Recruitment - A timeline that is ours to…

SYNGAP1 Related Disorder (SRD) Key Talking Points & why we need to use them. #S10e195

Jan 11, 2026 9m

Saturday, January 10, 2026 - Week 2 Here are key talking points to reference when talking about SRD. Please let us know your thoughts about how these could be better.…

Becky Quick launches CNBC Cures, Finding Your Voice & Key Talking Points for SRD! #S10e194

Jan 09, 2026 9m

Friday, January 9, 2026 - Week 2 Big news in SYNGAP-land, Becky Quick and Matt Quayle have a beautiful SynGAPian named Kaylie & they are launching CNBC Cures! - Wonderful to have more awareness…

Stockdale Paradox: Not getting out at Xmas, but we will win. #SynGAPCensus = 1,707. #S10e193

Jan 02, 2026 9m

Friday, January 2, 2026 - Week 1 #SynGAPCensus = 1,707 https://curesyngap1.org/blog/syngap1-census-2025-update-32-q4-2025-1707/ From the Cantor Report on CAMP4 The Stockdale Paradox. The best…

AES ‘25 was incredible, Fundraising, PRV, Behaviors, Posters/Pubmed & Thank you. #S10e192

Dec 21, 2025 9m

Saturday, December 20, 2025 - Five days till Christmas, 11 days left to raise funds to CURE SYNGAP1 AES was exceptional in many ways, here are a few: Rare & SYNGAP1 were both very visible,…

New book by #SYNGAP1 mom for and about #GlassChild (Sibling of Special Needs) #S10e191

Dec 01, 2025 14m

#CyberMonday, December 1, 2025. Week 49. Go buy The Monster Inside My Brother by Nicole Ciccone illustrated by Lena Bardy. Bookshop:…

AAV. Resources on cureSYNGAP1.org. Congrats to Ultragenyx & Novartis. Conf is in 5 days! #S10e190

Nov 27, 2025 9m

Happy Thanksgiving… Thursday, November 27, 2025. Week 48. Continued from #S10e189… And the AAV Paper (https://pubmed.ncbi.nlm.nih.gov/40988338/) from #S10e187……

#CureSYNGAP1 Conf: 1 week! #GivingTuesday: 5 days. #ProMMiS. Mvmt & Sleep papers. #S10e189

Nov 27, 2025 9m

Happy Thanksgiving… Thursday, November 27, 2025. Week 48. https://curesyngap1.org/clinical-trials/ Emerald from Praxis for Relutrigine and DeeP Ocean from Longboard for Bexicaserin. Check them…

It’s time to UNLOCK THEIR TOMORROW - let’s raise funds. Also: CAMP4 and our name. #S10e188

Nov 09, 2025 9m

Sunday, November 9, 2025. Week 46. End of year campaign: UNLOCK THEIR TOMORROW, curesyngap1.org/unlock Why now? UNLOCK It’s giving season. Count our blessings and share what we have. CS1 has…

Frequently Asked Questions

How many episodes does CURE SYNGAP1 PODCAST aka SYNGAP10 have?

CURE SYNGAP1 PODCAST aka SYNGAP10 has published 207 episodes since March 2021, covering topics in Business, Health & Fitness.

Is CURE SYNGAP1 PODCAST aka SYNGAP10 still active?

CURE SYNGAP1 PODCAST aka SYNGAP10 is currently highly active with new episodes weekly. Average episode length is 13m.

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