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Recent Episodes
Supporting Adult Scholars in the HAE Community: Tina's Story
In this episode, we hear from Tina S., an individual living with HAE and an adult recipient of the Pam King HAEA Scholarship. Tina shares her journey, the impact of the scholarship, and how…
Don't tough it out: Flip the Switch on HAE Attacks
Dr. Andrew Smith and Craig, an individual living with HAE, share insights on recognizing HAE attacks, understanding response strategies, and navigating day-to-day management. Through both clinical…
Episode 60: End of Year Legislative Update
In this month's HAE Speaks Podcast episode, welcome back Dane Christiansen for a comprehensive end-of-year legislative update. Dane breaks down the key policy developments, federal priorities, and…
Episode 59: What’s next for Hereditary Angioedema - What You Need to Know
This episode re-visits the HAEA National Summit session from HAE Expert and US HAEA Medical Advisory Board Member, Dr. Marc Riedl, as he offers a crucial look at the future of HAE care. The…
Episode 58: 10 Must-Ask Insurance Questions for HAE
In this episode, HAEA Nurse Case Managers, Troyce Venturella and Mandy Granat, share their 10 must-ask insurance questions for people living with HAE. Learn how to better understand your coverage,…
Episode 56: Understanding Medicare Enrollment
In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand. Together, they…
Episode 55: CHAPTER-3 , Pharvaris Oral Prophylaxis Phase 3 Study
In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the…
Episode 54: How to Ease Your Mind
In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about practices and tips for…
Episode 53: Legislative Update from our Washington Office
Tune into the latest episode of our “Legislative Series” of the HAE Speaks Podcast where we have a conversation with Dane Christiansen from our Washington office about pressing advocacy updates…
Episode 52: End of Progression: Understanding the Full Spectrum of a Bradykinin-mediated Angioedema Attack
In this month’s episode of the HAE Speaks Podcast, please join Raffi Tachdjian, MD, MPH, Associate Clinical Professor, David Geffen School of Medicine at UCLA, and Kenny Robinson, MD, Head of Medical…
Episode 51: Legislative Series - Insights from Two Grassroots Leaders
In this month’s episode of the HAE Speaks Podcast, we hear from Craig, a person with HAE, and his wife and caregiver, Melissa. They reflect on their powerful experiences during Rare Disease Week in…
Episode 50: Innovations in HAE with KalVista
This month's episode of the HAE Speaks podcast spotlights the innovative strides KalVista is making to improve care for people within the HAE community. It will offer insights into KalVista’s…
Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop Attacks
As a rare condition, understanding the root cause of Hereditary Angioedema (HAE) is crucial for improving patient management and care. On this episode of the HAE Speaks podcast, doctors Raffi…
Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
In this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our…
Episode 47: US HAEA National Summit Ask the Experts Q&A
Did you miss it? Tune in to our latest podcast episode as we bring you highlights from the Ask the Experts Q&A session at the 2023 US HAEA National Summit in Orlando, Florida. In this episode,…
Episode 46: My Cross-Country Trip Across the United States to Raise HAE Awareness
This month’s HAE Speaks Podcast episode features John, an individual with HAE, as he shares his inspiring journey of raising awareness cross-country. Join us as John recounts his innovative tactics…
Episode 45: HAEA DIY Community Events - Red Lake Nation HAE Awareness Walk
In this episode, we chat with Alecia, who shares her experiences hosting a memorial HAE walk in memory of her brother, Joseph Fairbanks Jr., who passed away due to HAE. Over 100 participants attended…
HAE, the holidays and you. Navigating the holiday season with HAE
Senior Nurse Advocate with over 20 years of experience working with HAE patients will discuss tips and recommendations for successfully navigating the busy holiday season with HAE. For more…
S4E44 Episode 44: A word from the HAE Community
2023 was a busy year for the HAE community. Listen in as community members share their highlights of 2023. For more information about Hereditary Angioedema please visit HAEA.org Thank you to…
S4E43 Episode 43: Kate is living Beyond HAE
Kate has lived with HAE all of her life but she does not let HAE control her life. Listen in as Kate shares her amazing feats and living her “dash” life. For more information about Hereditary…
Frequently Asked Questions
HAE Speaks has published 65 episodes since May 2020, covering topics in Business, Non-Profit.
HAE Speaks is currently active with new episodes monthly. Average episode length is 18m.
Sign up on Grep.FM to access contact details for HAE Speaks, including email and social media links.
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