Episodes 9
Avg. Duration 55m
Activity Highly Active
Apple Rating 5.0 (1)
Since Mar 2025
Latest Episode Mar 2026

Publishing Details

Schedule
Every 2 Months
Format
Episodic
Hosting
anchor.fm

About This Podcast

Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.

Explore Statistics

Recent Episodes

S2E1 Experiencing Love and Loss with PVS

Mar 25, 2026 57m

💗 This is a very emotional conversation discussing child loss. Consider having tissues handy and taking breaks as needed while listening. 💗In this episode, Jen Joly is joined by fellow PVS mom Brenna…

Finding Comfort in the Cold Realities of PVS

Nov 11, 2025 53m

In this episode, Jen Joly is joined by fellow PVS mom Haley Jezewski for an honest conversation about their daughters’ shared love of the cold — and how both moms have learned to keep breathing…

PVS Life: The Fridge Is Broken and the Phone Won’t Stop Ringing

Sep 11, 2025 51m

In this episode, Jen Joly is joined by fellow PVS mom Lauren Bizarro, a former bench scientist who now works in cancer pharmaceuticals, to share the story of her son Myles and their family’s journey…

Defying Odds and Thriving with PVS

Jul 23, 2025 30m

In this special "mini-episode", host Jen Joly sheds light on her own family’s deeply personal journey with Pulmonary Vein Stenosis (PVS) — a story many listeners have asked to hear. Since Summer’s…

The PVS Lessons That Change You

Jun 24, 2025 56m

In this episode, Jen Joly is joined by Jori Monich—fellow PVS mom, two-time twin mom, and long-time member of the PVS Families group on Facebook. Jen and Jori reflect on their often parallel journeys…

Fostering Hope Through the Unknowns of PVS

May 13, 2025 59m

In this episode, Jen Joly speaks with Liz Poe, co-founder of The Lady Josephine Foundation, as they explore the layered and deeply human experience of raising a child with Pulmonary Vein Stenosis…

Careers, Caregiving & Community: Parenting Through PVS

Apr 23, 2025 58m

In this episode, host Jen Joly talks with fellow working mom Lindsay Hughes about the extraordinary journey of raising a child with Pulmonary Vein Stenosis. The conversation traces Lindsay’s path…

Across the Pond: Two Moms, Same Fight Against PVS

Mar 10, 2025 49m

In this episode, host Jen Joly is joined by U.K.-based PVS Mom, Mischa Hand. Jen and Mischa share their heartfelt journeys as mothers navigating the complexities of their daughters' pulmonary vein…

Introduction with Jen Joly

Mar 09, 2025 3m Trailer

In this trailer for Navigating PVS, host Jen Joly introduces the mission behind the podcast and what listeners can expect. Jen shares a brief look at her family's journey and explains her commitment…

Frequently Asked Questions

How many episodes does Navigating PVS have?

Navigating PVS has published 9 episodes since March 2025, covering topics in Documentary, Society & Culture.

Is Navigating PVS still active?

Navigating PVS is currently highly active with new episodes every 2 months. Average episode length is 55m.

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