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Recent Episodes
RealTalk: CDH - Gentle Ventilation w/ Dr. Suneetha Desiraju
Our topic today is one that is near and dear to every CDH parent’s heart — innovation in CDH care, ventilation strategies, and reducing the need for ECMO. Dr Suneetha Desiraju joins us to explain the…
RealTalk: CDH - Dr Chung
On this episode I chat with Dr. Wendy Chung, Chief of Pediatrics at Boston Children’s Hospital and founder of DHREAMS, the longest-running CDH research study. Dr. Chung shares what DHREAMS has…
RealTalk: CDH - Loss Dads
Join us as we hear from CDH dads Tom Polizzi and Jordan Casey. Both have walked through the heartbreaking loss of a child to CDH—at very different points in the journey. They share openly about…
RealTalk: CDH - Life, Legacy and Loss
On this episode I speak with Roxanne's mom Erin. She shares her journey from pregnancy to diagnosis and from bringing her baby home to an unexpected loss. You may shed a tear but you will also be so…
RealTalk CDH: All about IEPs
Join us as I speak with Jordan Casey, Victoria Casey and a fellow CDH mom Angela Morse about the IEP process. We discuss your rights as a parent and the appropriate language to use to ensure your…
Real Talk: CDH - Care Coordination: Who to call and when
Ashley Ebanks, nurse practitioner (NP) from the pediatric surgery care team at Children's Memorial Hermann shares some helpful tips regarding care coordination, even answering the difficult questions…
Real Talk CDH: Dr. Harting
We’re thrilled to welcome Dr. Matthew Harting from Children's Memorial Hermann and the University of Texas, in Houston TX. This episode is a must-listen for every family who has ever faced the…
RealTalk CDH: Pregnancy After Loss
On this episode 2 CDH loss mamas share their journeys of loss and the difficult decision to try again. Whether you have lost a child to CDH or you know someone who has this episode is for you. Kirby…
RealTalk CDH: CDH Round 2
Listen in as I chat with Kelsey White, CDH Mama X 2. Kelsey shares her unbelievable journey that includes being a mommy to CDH Angel Avett and CDH Survivor Anders. Kelsey has faced the worst thing…
RealTalk CDH: Kristin and Tom Polizzi
On this episode I talk with Kristin and Tom Polizzi, parents to CDH Angel Charlie and Founders of Charlie's Warrior of the Angels. You will laugh and you will cry but mostly you will be in awe of…
RealTalk CDH: Nicoletta
On this episode I talk with Nicoletta, CDH mom and founder of Healthcare Redefined. As both a CDH mom and a board certified patient advocate Nicoletta understands the overwhelming feelings of this…
RealTalk CDH: Dr Keijzer
On this episode I chat with Dr Keijzer who is a pioneering researcher in the field of pediatric surgery and congenital anomalies, with a particular focus on congenital diaphragmatic hernia (CDH) and…
RealTalk CDH: Jami Z
Join us as we hear from Jami, Shepherd's mama as she get's real about CDH, trach's and postpartum depression/anxiety. You will laugh, you will cry and you will be so glad you listened.
RealTalk CDH: FETO
This episode is all about FETO. We hear from 3 moms who have asked the hard questions, done the research, had the procedure and are excited to share their journey with us all.
S1E2 RealTalk CDH: Newly Diagnosed
Continuing with our series on tough questions we are talking about the tough questions parents ask themselves when they are first told their child has CDH. These are questions that maybe you were too…
RealTalk CDH: Brianna Fullmer
On this episode we hear from Brianna Fullmer, mama to CDH Angel Reagan and founder of the Reagan Valeria Foundation. We smile, we cry and we laugh uncontrollably because though this is a story about…
RealTalk CDH: Savannah & William
In this episode I talk with Savannah Lopez Sotomayor about her beautiful angel baby William Joe. I laughed and I cried, sometimes at the same time as Savannah shared her loss journey. She gets real…
RealTalkCDH: Sasha White
Listen to CDH mama Sasha White share her journey with her son, CDH survivor Luka. Sasha shares her story from diagnosis, to wrestling with hospital choice and transfer.
RealTalk CDH: Shannon
Today we are talking with Shannon Connor, mama to CDH angel Molly. Shannon shares her journey with grief, the amazing friendships she has found along the way and the new venture she has taken on in…
RealTalk CDH: ECMO
In honor of heart month we talk with 2 CDH mama's who share the incredible story of their children's extreme ECMO journey's. This includes the longest ECMO run for Dr Kays at JHACH as well as ECMO…
Frequently Asked Questions
Real Talk CDH has published 25 episodes since November 2023, covering topics in Business, Non-Profit.
Real Talk CDH is currently active with new episodes every 2 weeks. Average episode length is 51m.
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