Episodes 12
Avg. Duration 59m
Activity Declining
Apple Rating 5.0 (2)
Since Jan 2024
Latest Episode Oct 2025

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Publishing Details

Schedule
Monthly
Format
Episodic
Hosting
pinecast.com

Contact & Outreach

About This Podcast

Dysunderstood exists to share stories and and foster community of the dysunderstood- those living with complex, misunderstood, chronic illness. The Dysunderstood podcast provides a platform to patients, providers and the community collectively working towards increased understanding of infection-associated conditions like dysautonomia, Long Covid, ME/CFS, chronic lyme, and more. Guests share their lived experience, knowledge, and hopes for the future of this community. The Dysunderstood Podcast host, Ella Eastin, created the Dysunderstood platform after her own experience with disabling, chronic illness that ended her professional swimming career and drove her to pursue a career in medicine.

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Recent Episodes

S2E6 S2E6 - S2E6: Corri's Story

Oct 17, 2025 1h 9m

Corri, a returning community member talks about how POTS has led her to reimagine movement, creativity, and self-compassion. She opens up about her evolving relationship with dance, how art became a…

S2E5 S2E5 - S2E5: Sarah's Story

Oct 10, 2025 1h 6m

Meet Sarah- she’s navigating life with POTS, MCAS, and Autism. She has entrenched herself in advocacy and the disability community, providing many recommendations to learn more about bias and the…

S2E4 S2E4 - S2E4: James's Story

Jan 31, 2025 1h 6m

James, our first male patient guest talks about his experience with Long COVID POTS, his perspective changes and managing life with a great sense of humor in the face of disabling illness. James…

S2E3 S2E3 - S2E3: Olga's Story

Oct 18, 2024 1h 14m

Olga, a proud mom of two with POTS, openly shares her journey to diagnosis, the challenges of balancing parenthood and chronic illness. She discusses the small victories that have helped her regain…

S2E2 S2E2 - S2E2: Dr. Feldstein's Story & Wisdom

Oct 11, 2024 1h 4m

Ella talks with Dr. Bruce Feldstein, a former emergency medicine physician who, after a disabling injury, transitioned into spiritual care at Stanford as a chaplain. They discuss themes of identity,…

S2E1 S2E1 - S2E1: Sam's Story

Oct 04, 2024 46m

Season 2's first community story is shared by Samantha Pearson, a Stanford University swimmer diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) and long COVID after experiencing…

S1E6 S1E6 - S1E6: Dr. Peter Rowe- Decades of Dedication to Complex Chronic Illness

Feb 16, 2024 50m

Dr. Peter Rowe speaks about his pioneering work in identifying and treating ME/CFS, dysautonomia, and hypermobility in patients, including insights into long COVID, emphasizing his dedication to…

S1E5 S1E5 - S1E5: Diana's Story

Feb 09, 2024 51m

Diana, the first Dysunderstood community author, shares her life-changing journey, starting from a POTS and MECFS diagnosis during her collegiate swimming career, to pursuing her law degree and the…

S1E4 S1E4 - S1E4: Daniela's Story

Feb 02, 2024 59m

Daniela, after years of managing undiagnosed illnesses during her teen years, begins her true healing process, embracing a holistic approach and the mind-body-spirit connection. We discuss challenges…

S1E3 S1E3 - S1E3: Christine's Story

Jan 26, 2024 51m

Christine Reed- Author, Adventurer, and Athlete with POTS- discusses her journey towards self-acceptance, empowerment through outdoor activities, her experience reaching a POTS (Postural Orthostatic…

S1E2 S1E2 - S1E2: Taylor's Story

Jan 19, 2024 58m

A vulnerable discussion with Taylor about defying limits and creating new dreams in the face of new challenges- living with disability, Ehlers Danlos Syndrome and POTS. Find us all on Instagram:…

S1E1 S1E1 - S1E1: Jackie's Story

Jan 12, 2024 1h 2m

A heartfelt conversation with Jackie on managing motherhood, Hypermobile Ehlers-Danlos Syndrome, and POTS. To read or listen to Jackie's original story she shared with Dysunderstood, visit Awareness…

Frequently Asked Questions

How many episodes does The Dysunderstood Podcast have?

The Dysunderstood Podcast has published 12 episodes since January 2024, covering topics in Education, Medicine.

Is The Dysunderstood Podcast still active?

The Dysunderstood Podcast is currently declining with new episodes monthly. Average episode length is 59m.

How do I contact The Dysunderstood Podcast for sponsorship or guest appearances?

Sign up on Grep.FM to access contact details for The Dysunderstood Podcast, including email and social media links.

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