The Joy Tax Podcast
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About This Podcast
The Joy Tax Podcast is a conversation series for parents and caregivers raising a child or teen with complex, chronic conditions, such as dysautonomia, ME/CFS, Long COVID, PANS/PANDAs, MCAS. The normal parenting wisdom doesn’t fit the situations we are living through. This is a forum to share, affirm, and learn from each other. It's also a window for allies to listen in and gain deeper insight into the world we inhabit."
The show is named for one of the key symptoms of ME/CFS: post exertional malaise or PEM, or what our family calls “joy tax” which is simply a worsening of symptoms after physical, cognitive, emotional, or social exertion. Sometimes, the resulting crash can be mild, while at other times, it can lower a person’s baseline for weeks, months, or even years.
This podcast is not a substitute for medical guidance. We don't endorse specific treatments, and we encourage you to always talk to your healthcare provider before making any medical decisions.
If you have questions, comments, or are interested in appearing on the show, please email: [email protected]
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Recent Episodes
Ep. 6: “Trust Your Intuition”-Dr. Elham Raker on Advocating for Kids & Teens at the Doctor's Office
In this episode, Dr. Elham Raker, a pediatrician and mother of a child with Long Covid, sheds light on the complexities of managing chronic illness in children. We discuss advocacy, navigating…
Ep. 5: School Year Update with Kimberly Burwick (Part II)
In the previous episode, Kimberly Burwick and I talked about our hopes for the start of the school year. At the start of spring break, we sat down to share how the last six months have unfolded for…
Ep. 4: "Life is Sooo Isolating"-Kimberly Burwick on Human Connection
At the start of the school year, Kimberly Burwick and I sat down to talk about our friendship, our hopes, and the judgments parents navigate when raising children with a complex illness. She…
Ep. 3: "Kids Don't Make This Stuff Up" -Sallie Rediske on Pacing with Kids & Teens
Sallie Rediske discusses pacing with kids and teens, the damages caused by the PACE trial, and what it was like to navigate ME/CFS since childhood--long before she had a diagnosis or language for…
S1E2 Ep. 2: "Harder Than Being a War Reporter"-Becky Diamond on Raising a Son with Long Covid
Becky Diamond is the mom of a son with Long COVID. In this conversation, she talks about the reality of isolation, the ongoing work of advocating for her teen, and what it means to be a "good mother"…
S1E1 Ep. 1: "Listen to Your Child"- a Conversation with Suzan Jackson
Suzan Jackson is a seasoned voice of wisdom for parents raising kids with ME/CFS and related illnesses. In this conversation, she shares what it was like to be diagnosed with ME/CFS, and then shortly…
Frequently Asked Questions
The Joy Tax Podcast has published 6 episodes since January 2026, covering topics in Health & Fitness, Kids & Family.
The Joy Tax Podcast is currently highly active with new episodes monthly. Average episode length is 48m.
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