The KCNA2 & Rare Epilepsy’s Podcast
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About This Podcast
Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it.
Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope.
This isn’t a science podcast (though you’ll learn a lot), our focus is on belonging and education. Together, we can move towards better treatments, clinical trials and ultimately, a cure.
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Recent Episodes
Rare Epilepsy and Genomic Testing Explained with Dr. Erika Gray and Dr. Nancy Musarra
In this episode of the KCNA2 & Rare Epilepsy Podcast, Nancy sits down with Dr. Erika Gray, pharmacist and Chief Medical Officer of Toolbox Genomics, to break down the difference between genetics…
Epilepsy Is More Than Seizures with Monica Lopez Morales and Dr. Nancy Musarra
In this episode of the KCNA2 & Rare Epilepsy Podcast, we welcome back epilepsy advocate Monica Lopez Morales for an honest and empowering conversation about what it really means to live with…
Understanding KCNA2 Epilepsy with Researcher Dr. Ulrike (Uli') Hedrich-Klimosch & Dr. Nancy Musarra
What does a KCNA2 diagnosis actually mean, and how do researchers study rare epilepsies? In this episode of the KCNA2 & Rare Epilepsy Podcast, Nancy speaks with Dr. Ulrike (Uli')…
What Does a Seizure Feel Like? Real Stories from Monica Lopez Morales and Dr. Nancy Musarra
This conversation goes beyond definitions and medical terms. It brings real clarity to what epilepsy looks like day to day, the stigma many people still face, and why awareness matters. Together,…
What KCNA2 Parents Should Know About Neurologically Focused Chiropractic Care with Dr. Nate DeJong
What does neurologically focused chiropractic care actually look like for children with KCNA2, epilepsy, developmental delay, motor challenges, and nervous system dysregulation? In this episode of…
One Family's Journey After Receiving A New KCNA2 Diagnosis with Alysha Applebaum and Nancy Musarra
If you’ve just received a KCNA2 diagnosis or you’re still searching for answers, this video is for you. KCNA2-related disorders are rare, complex, and often overwhelming at first. You may be feeling…
“It’s More Than Just a Seizure” Living With KCNA2 Epilepsy Day to Day
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with McKayla Leber, a KCNA2 mom, board member, and Air Force spouse. McKayla shares her family’s journey raising her son…
From Diagnosis to Advocacy: Inside the Rare Epilepsy Network (REN)
In this episode, Nancy speaks with leaders from the Rare Epilepsy Network (REN) about what it truly takes to move rare epilepsy research forward. She is joined by Eileen Miller, Director of REN and…
A Mother’s 23-Year Journey with KCNA2 Epilepsy
In this episode, Barbara Wolf shares her family’s journey with KCNA2-related epilepsy as the mother of Ella, now an adult living with the condition. Barbara reflects on the earliest signs that…
From the NICU to a KCNA2 Diagnosis: A Parent’s Early Warning Signs
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with Oriana Hornick, a longtime KCNA2 community member, KCNA2 Epilepsy Foundation board member, and research coordinator.…
What Happens in the ER After a Seizure? Emergency Doctors Share Their Insights With Dr Nancy Musarra
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy Musarra is joined by two emergency room physicians, Dr. Katie Robottom and Dr. Rosetta Robottom, a mother-daughter team with…
The KCNA2 and Rare Epilepsy Podcast Trailer
The KCNA2 and Rare Epilepsy Podcast If your child has seizures and a KCNA2 diagnosis, life can feel confusing, isolated and scary. The KCNA2 and Rare Epilepsy Podcast, hosted by Dr. Nancy Musarra, is…
Frequently Asked Questions
The KCNA2 & Rare Epilepsy’s Podcast has published 12 episodes since January 2026, covering topics in Health & Fitness, Kids & Family.
The KCNA2 & Rare Epilepsy’s Podcast is currently highly active with new episodes weekly. Average episode length is 36m.
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