Gene Therapy for Hemophilia
Canadian Hemophilia Society
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About This Podcast
Gene therapy has remained a constant prospect in the sphere of hemophilia treatment. For over two decades and the question remained: Is this just a dream, or could it one day become a reality?
Hemophilia gene therapy has finally been approved.
David Page talks to hemophilia specialists that will dive deep into understanding how the treatment works, its significance in advancing treatment, and how a one time treatment could change a severe condition to a milder one.Though not a definitive cure, gene therapy for hemophilia has transformed the dream of a cure into a reality for the future.
David and his guests will provide exclusive insights into one of the most significant medical breakthroughs of our era.
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Recent Episodes
S3E1 All About Von Willebrand Disease: Von Willebrand Disease 101
2026 marks the 100th year anniversary of when Dr Eric Von Willebrand first described the condition in a five year old girl. With this anniversary, we at the Canadian Hemophilia Society feel it's the…
S2E15 Shared Decision-Making
Over the last several years, gene therapy for hemophilia B has become a reality. Some received it through clinical trials, and others received it after marketing authorizations and reimbursement…
S2E14 Four People Describe Their Experiences with Hemophilia B Gene Therapy
Over the last several years, gene therapy for hemophilia B has become a reality. Some received it through clinical trials. Others received it after marketing authorizations and reimbursement…
S2E13 If Gene Therapy for Hemophilia B Were Available Tomorrow, Would You Want to Receive It?
For the last 40 years, we have witnessed tremendous advances in care and treatment for people with hemophilia. Gene therapy has been a dream for most of those 40 years, and the last two to three…
S2E12 Overview of Gene Therapy Approaches
In this first episode of our second podcast series, GENE THERAPY FOR HEMOPHILIA – FROM DREAM TO REALITY, Dr. David Lillicrap describes what gene therapy is in 2026 and hopefully how it works. Dr.…
WEBINAR 2: [FR] Un Pas en Arrière, Deux Pas en Avant
Le webinaire de la Société canadienne de l'hémophilie a abordé la thérapie génique pour les hémophiles. Dr. Jean St. Louis a expliqué les différences entre les injections de facteurs et la thérapie…
WEBINAR 2: [EN] Hemophilia Gene Therapy: One Step Back, Two Steps Forward
The Canadian Hemophilia Society's December 4, 2024 webinar on hemophilia gene therapy featured the latest research and access updates. Dr. Roy Khalifé described how AAV vector gene therapy works in…
S1E11 DEBATE: If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?
In this podcast, Elizabeth Vansant, Mark Pervan, Murray Milne and Mathieu Jackson, all individuals with severe hemophilia B, are asked to debate the question: “If gene therapy for hemophilia B were…
S1E10 DEBATE: If gene therapy for hemophilia A were available in Canada tomorrow, Would you want to receive it?
In this podcast, Cleaven Pagani, Rick Waines, Paul Wilton and Emil Wijnker, all with severe hemophilia A and also members of the Canadian Hemophilia Society Blood Safety and Supply Committee, are…
S1E9 What Other Approaches To Hemophilia Gene Therapies Are Down The Road?
The first generation of gene therapy for hemophilia, called gene insertion or gene addition, is now a reality, but it is not for everyone. Dr. Glenn Pierce explores other approaches to gene therapy…
S1E8 How Might Gene Therapy Be Delivered In Canada?
In this podcast, Dr. Jerry Teitel explores how gene therapy for hemophilia A and hemophilia B might be delivered to patients across Canada in an equitable way, even though the administration will…
S1E7 How Might Gene Therapy Be Funded In Canada?
Gene therapy—a high-cost, one-time, potentially life-changing treatment—presents unique challenges for governments that make decisions on funding innovative treatments. Dr. Durhane Wong-Rieger…
S1E6 What Is The Shared Decision-Making Process In Hemophilia Gene Therapy?
In this podcast, Dr. Jerry Teitel describes the process of shared decision-making prior to gene therapy in hemophilia A and hemophilia B, and how the nature of gene therapy itself makes shared…
S1E5 What Don’t We Know About Gene Therapy For Hemophilia?
In this podcast, Dr. Glenn Pierce explores what we know we don’t know and what we don’t even know we don’t know about the brand-new treatment which is gene therapy for hemophilia A and B. Glenn is a…
S1E4 What Is It Like To Receive Gene Therapy?
In this podcast, Brian O’Mahony explores the patient experience of gene therapy for hemophilia, from the shared decision-making process prior to gene therapy, to the administration itself, to the…
S1E3 What Are The Clinical Trial Results In Hemophilia Gene Therapy?
In this podcast, Dr. David Lillicrap presents the results of clinical trials in hemophilia A and hemophilia B gene therapy. He describes how high factor VIII and IX levels can rise, how predictable…
S1E2 Who Is Eligible For Hemophilia Gene Therapy?
In this podcast, Brian O’Mahony explores why gene therapy for hemophilia A and Hemophilia B is not for all patients. He describes what makes a person eligible, and in some cases ineligible, to…
S1E1 What Is Gene Therapy For Hemophilia?
In this podcast, Dr. David Lillicrap describes in easy-to-understand language what gene therapy for hemophilia A and hemophilia B is, how it is administered and how it works. Dr. Lillicrap is a…
Introducing: Gene Therapy for Hemophilia: Dream or Reality?
This is a series of podcasts featuring well-known patient and physician experts will provide important answers, for example: What are the clinical trial results in hemophilia GT? What is the shared…
Frequently Asked Questions
Gene Therapy for Hemophilia has published 19 episodes since November 2023, covering topics in Alternative Health, Health & Fitness.
Gene Therapy for Hemophilia is currently active with new episodes monthly. Average episode length is 20m.
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