Living With Cystic Fibrosis
Laura Bonnell
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Recent Episodes
S3E188 Failure, Grit, and Breakthroughs with Dr. Tom Kaiser
“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the…
S3E186 Christopher Cornejo, late diagnosis with CF
Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to…
S1E185 No Time to Wait: Beth Vanstone’s Fight for Access via Advocacy
A mother, advocate and one woman's global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive. Sometimes the most…
S3E184 Bridging Two Countries, One Mission: Cesar and Nora Hernandez
Bridging Two Countries, One Mission: Cesar and Nora Hernandez Fight for Spanish-Speaking CF Families “When Alex was diagnosed, we felt fear and responsibility. If we had access to information in…
S3E183 Turning Grief Into Purpose: Margarete Cassalina’s CF Journey
Finding Strength After Loss: A Conversation with Margarete Cassalina I first met Margarete Cassalina when we were hosted for dinner by Bob Emmelkamp at the North American Cystic Fibrosis Conference…
S3E182 Education, connection, and community, bringing the CF community together.
Education, connection, and community are at the heart of our CF community. On Saturday, April 18th from 11:00 a.m. to 1:30 p.m. we gathered at the Next Step Gallery in Ferndale. Set in a bright…
S3E180 Learning, Leading, Listening: Julie Eichenberg of BreatheStrong CF
“Being a CF aunt has shaped so much of my life. Now I get the opportunity to turn that love and connection into helping even more people at Breathe Strong CF." Julie Dunn Eichenberg didn’t just find…
S3E179 Men with CF and Infertility: The Science, The Options, The Hope.
Men with CF and Infertility: The Science, The Options, The Hope. Pete Proimos is an entrepreneur, a chronic illness advocate, and the founder of the Filotimo Foundation, a nonprofit dedicated to…
S3E178 Hope for the final ten percent, Dr. Alan Cohen, Arcturus
Three decades caring for patients with CF, that’s Dr. Alan H. Cohen. His experience continues to shape everything he does today. As a pediatric pulmonologist (board-certified) , he has walked…
S3E177 Spreading Joy in a Small World: Julie McCaffrey’s Story
I’ve known Julie McCaffrey for years. She lives about 40 minutes from me, in Romeo, Michigan. Julie and her husband, Curtis, are raising four daughters, and their oldest, Jenna—now 20—lives with…
S3E176 Making medical moments less scary thanks to Abby Rose (Child Life Specialist)
“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re…
S3E175 Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd
Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep…
S3E174 "Patients are waiting." Steve St. Onge with Clarameytx
“Patients are waiting…”Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply.Science has always fascinated me. I often…
S3E173 "Ever moment, every day is worth celebrating." Somer Love
"Ever moment, every day is worth celebrating." Somer LoveSomer Love has spent her life choosing hope, dreaming big, and showing up fully for each day. Diagnosed with cystic fibrosis at just 11 months…
S3E172 When Insurance Gets Between Doctors and Patients
When Insurance Gets Between Doctors and PatientsDr. Elizabeth Ames and Dr. Caleb Bupp are deeply committed to their patients. But like so many clinicians today, they’re spending an extraordinary…
S3E171 Impacting CF with science: Dr. Jeffry Weers
Innovating Medicine: How Science, Collaboration, and Curiosity Transform Patient CareIt is always inspiring to speak with true innovators on this podcast, the people who don’t just follow the…
S3E170 Daelyn James: Embracing the Fight
Daelyn James, is someone who understands the power of owning your story. Diagnosed with cystic fibrosis at just four years old, she remembers what it felt like to go from a carefree childhood to one…
S3E169 65 Miles of Hope with Chad Eddy
Running for Time: Chad Eddy’s Mission Against Cystic FibrosisFor Chad Eddy, the fight against cystic fibrosis isn’t abstract, it's personal. He’s the proud uncle of two nieces born with CF. One is…
S3E168 Guiding through Grief with Jennifer Frush
When Jennifer joined New Hope in 2018, she didn’t just take a job — she stepped into a calling. What began as a role coordinating outreach and events quickly became a mission to change how…
S3E167 A Rockstar Scientist meet Dr. Colin Hemez
A black leather jacket, black hoop earrings, black T-shirt and pants. You may visualize a rock star, and Colin Hemez is a rock star of sorts, but he actually works in a white coat, a doctors coat.…
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Living With Cystic Fibrosis has published 200 episodes since February 2019, covering topics in Documentary, Education.
Living With Cystic Fibrosis is currently highly active with new episodes weekly. Average episode length is 38m.
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