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Recent Episodes
The Road to LA28 - Paralympics Series with Ben Watson - #1 - Introduction & the year so far
What does it take to get to the Paralympics? What does it take to win a medal? Those are the questions we hope to answer over the next couple of years in our Road to LA28 series with British…
Rob Long - Uplifting Athletes and the Rare Disease Community
Remarkable, inspirational, humbling are just a few of the words that can be used to describe Rob Longs journey from the verge of the NFL draft to his role as CEO of Uplifting Athletes via an 18 month…
Miles Washburn - Miles for GBS - "It's all about the patient"
“It’s all about the patient”In this episode, I talk to Miles Washburn about his GBS experience, the Miles for GBS challenge and about the motivation behind it.Early in 2025, Miles Washburn was struck…
Dr Ludo van der Pol - MMN Innovation and Trials
What has enabled recent developments in understanding of the mechanisms that cause MMN?Why have these developments been important in the development of new possible treatments currently being…
Claire Bergstrom Johnson - Neuroscientist, Entrepreneur and Change Maker
In the latest episode of our podcast, I chat to Claire Bergstrom Johnson. A research scientist at the University of Oxford, Claire Bergstrom Johnson is making meaningful discoveries that are…
John Navarro - Finding your calling after diagnosis with Multifocal Motor Neuropathy (MMN)
John Navarro is remarkable in many ways. First affected by MMN about 8 years earlier, John was diagnosed with MMN in 2024. His journey to diagnosis was by no means easy. After first experiencing…
Ben Watson - From Guillain Barre Syndrome to Paralympic Gold - An Incredible Journey
Ben Watson MBE is a full time Para athlete, double paralympic champion and Ambassador for Inflammatory Neuropathies UK. Diagnosed with Guillain Barre Syndrome aged 14. Almost overnight Ben went…
Michael Klim - From Olympic Champion to Rare Disease Champion - An Aussie swimming legend on life with CIDP
Adapting to and thriving in adversity and so much more.. In 2020, Australian swimming legend and two time Olympic gold medal winner Michael Klim was diagnosed with the Chronic Inflammatory…
Dr Jeff Allen - The latest in MMN research and drug trials
In this episode I talk to Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory…
S2E10 All About MMN Awareness Month 2025
With February approaching I sat down to chat to Maddy Miller, Kaitlyn Ide and Meg Mains of the GBS|CIDP Foundation International about Multifocal Motor Neuropathy Awareness Month. What ensued was a…
S2E9 Dr Gareth Parry - Getting a Grip - Understanding better how MMN affects you
Dr Gareth Parry joins me to discuss the small study we are doing to try to understand how my MMN is affected by my preparation for the Tour de MMN 2025. In our conversation Gareth provides an…
S2E8 Dr Jeff Allen - A deep dive into MMN
A true deep dive into MMN with Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory…
S2E7 Edward Gent - Tackling a marathon when you have MMN - why it's a team sport
Edward Gent joins me to discuss his recent foray into marathon running as part of the Ride for MMN and MMN Awareness Month. Edward had never attempted anything like this before his diagnosis with…
S2E6 Lynn Rogers - Research Scientist and Triathlete on life with CIDP
In this episode I chat with Lynn Rogers about her life with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Lynn is a research scientist who in 2017 found herself experiencing pain and loss…
S2E5 Rich Collins - Bringing New Energy to GBS, CIDP and MMN in the UK
In this episode recorded at the start of GBS|CIDP Awareness Month I chat to Rich Collins CEO at GAIN Charity in the UK. GAIN stands for Guillain-Barré Syndrome & Associated Inflammatory…
S2E4 Nancy Di Salvo - Connector Across Continents
In this episode of the podcast I chat to Nancy Di Salvo Director of International Affairs at the GBS|CIDP Foundation International. A truly remarkable woman Nancy has has lived through two bouts of…
S2E2 Kate Costello - Nutritionist and Wellness Coach - Keeping to the Basics
What can those with autoimmune condition do to help manage their condition beyond the treatment prescribed by their doctor? What diet should i be on if i have an autoimmune condition?Common questions…
S2E1 Anita Brikman - Liquid Gold - About Plasma
To coincide with MMN Awareness month my first conversation this year is with Anita Brikman, President and CEO of the Plasma Protein Therapeutics Association (PPTA) A former TV presenter, Anita has…
S1E11 James Coxon - Riding to World Records with MMN
In this episode I chat to James Coxon about his remarkable journey with MMN which has seen him become a world record holding cyclist since he was forced by the condition to take early retirement from…
S1E10 Pam Stoikopoulos - Healthcare Innovator and life with MMN
In this episode I chat to Pam Stoikopoulos, Founder and CEO of Big Eye Innovation and member of the Board of GBS|CIDP Foundation Canada. Pam was diagnosed with Multifocal Motor Neuropathy in 2017. In…
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Making the Most of Now has published 29 episodes since February 2023, covering topics in Health & Fitness, Science.
Making the Most of Now is currently highly active with new episodes every 2 months. Average episode length is 1h 5m.
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