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About This Podcast
Welcome to the March Forward podcast, a space dedicated to the rare disease community. We understand the unique challenges you face, from the 'diagnostic odyssey' to navigating complex treatments and the emotional toll of caregiving. Our podcast aims to provide clear, trustworthy, and in-depth information, fostering hope and support as we explore the latest advancements in rare disease research and care.
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Recent Episodes
S1E15 What Really Happens When You Join a Clinical Trial? 5 Patient Stories
Send a textWhat's it actually like to be in a clinical trial? Past all the paperwork and medical talk, it's really about people taking big risks because they're hoping for something better. Just…
S1E14 The Warning Signs of Caregiver Burnout.
Send a textIf you’re a caregiver for someone with a rare disease, you are one of the unseen heroes of our community. Your strength, dedication, and love are the backbone of care, but we know this…
S1E13 Can Holistic Medicine Help Your Rare Disease? What You Need to Know.
Send a textLiving with a rare disease touches every part of your life, not just your body, but how you feel mentally and emotionally too. It makes sense that you'd want to explore every option to…
S1E12 Is a Clinical Trial the Right Path for My Rare Disease?
Send a textConsidering a clinical trial can bring up a lot of emotions, hope, uncertainty, and so many questions. For those in the rare disease community, it often represents a path toward new…
S1E11 Can Personalized Medicine Finally Help Rare Disease Patients?
Send a textWhat if your treatment was as unique as your own DNA? 🧬For so many in the rare disease community, the dream of a therapy tailored specifically to their body is now becoming a reality. This…
S1E10 Can AI Accelerate Drug Repurposing for Rare Diseases?
Send a textWhat if we told you that AI is helping us find new uses for existing medicines, bringing us closer to treatments for rare diseases? 🔍 🔬 In this episode of March Forward, we gently explore…
S1E9 How Can We Cope with the Mental Toll of Rare and Chronic Illness?
Send a textHave you ever felt that living with a rare or chronic illness comes with an unseen weight, a battle fought not just in the body, but in the mind too? 🧠In this episode of March Forward, we…
S1E8 How SHEPHERD AI Can Help with Quicker Rare Disease Diagnoses
Send a textThe search for a rare disease diagnosis can be a long and lonely journey. But what if advanced technology could help light the way? 🔍In this episode of March Forward, we're exploring…
S1E7 C2S-Scale: Yale & Google's AI That Reads Cells. Will It Work for Rare Diseases?
Send a textA new collaboration between Yale and Google just released C2S-Scale, a 27-billion parameter foundation model that's learned to "read" cells by converting gene expression into text. It's…
S1E6 What's inflammation got to do with your rare disease?
Send a textCould inflammation be the missing piece in your rare disease puzzle? 🤔If you're living with a rare condition, understanding your body's inflammatory response might be the key to better…
S1E5 The First Therapy to Unlock Trapped Immune Cells in WHIM Syndrome
Send a textImagine your body's best defenders, your immune cells, are ready for duty but locked away, unable to fight. 🛡️ For individuals with the ultra-rare WHIM syndrome, this isn't just an idea;…
S1E4 Fidanacogene Elaparvovec for Hemophilia B
Send a textImagine your body's best defenders, your immune cells, are ready for duty but locked away, unable to fight. 🛡️ For individuals with the ultra-rare WHIM syndrome, this isn't just an idea;…
S1E3 Afamitresgene Autoleucel (Tecelra) for Synovial Sarcoma
Send a textWhat happens when standard treatments for a rare cancer like synovial sarcoma fall short? Could Empowering the answer lie in empowering your own immune system? 🛡️In this episode of March…
S1E2 Can In-Body Gene Editing Help Cure Rare Genetic Diseases?
Send a textWhat if we could gently fix the tiny genetic 'typos' that cause devastating rare diseases, right where they are in the body? 🧬In this episode of March Forward, we dive into In Vivo CRISPR…
S1E1 Enzyme Replacement Therapy for Lysosomal Storage Diseases
Send a textFor families navigating Lysosomal Storage Diseases, the routine of Enzyme Replacement Therapy is a familiar path. But what if the future holds new and different options? In this episode of…
Frequently Asked Questions
March Forward has published 15 episodes since September 2025, covering topics in Health & Fitness, Life Sciences.
March Forward is currently sporadic with new episodes weekly. Average episode length is 19m.
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