Episodes 250
Avg. Duration 41m
Activity Highly Active
Apple Rating 4.8 (116)
Since Jul 2022
Latest Episode Jun 2026

Publishing Details

Schedule
Weekly
Format
Episodic
Consistency
76%
Hosting
feeds.castos.com

Contact & Outreach

About This Podcast

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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Recent Episodes

S4 Tinsley on law school, a dream job, marriage, and making it work with severe POTS

Jun 07, 2026 33m

Tinsley has had POTS symptoms during two different stages of her life.  First at 16, in response to a severe allergic reaction to her braces, which went into remission when she had them removed; and…

Dr. Tania Dempsey on GLP-1s for MCAS, POTS and related conditions

May 30, 2026 41m

This is a not-to-be-missed episode!  Dr. Dempsey discusses the use of GLP-1 medications for MCAS, including her most recent observations and recommendations.  This is a follow-up to Dr. Dempsey's…

S5 A happy ending after surgeries, stenting, & a renal auto-transplant - with Simone Erdner, PhD

May 26, 2026 1h

Simone was a professor of sport psychology enjoying a trip through Mexico when symptoms became too serious to ignore.  POTS was just one of many symptoms (many were gynecological) and she ultimately…

All about IV Infusions with Betsy Harmon, RN, CRNI, CPUI, VA-BC

May 18, 2026 59m

Betsy Harmon, RN, CRNI, CPUI, VA-BC has been an infusion nurse for over 20 years and runs the Alaska Infusion Center in Anchorage, Alaska, where she oversees and administers all types of infusions to…

S4 Diaries with Amy on horses, family fun, and spending over half her life with POTS

May 10, 2026 29m

Amy is a mom and equestrian from North Carolina who has now spent over half her life with POTS.  In this episode she shares how she finished high school (early), has enjoyed horses throughout periods…

Dr. Sally Daganzo on eating disorders, physical drivers of mental health and more

May 02, 2026 37m

Dr. Sally Daganzo is a board-certified internal medicine physician with advanced training in psychiatry, eating disorders and functional medicine. She has a private practice in San Rafael California…

S4 Elli (from ep 65) on new diagnoses and MALS surgery

Apr 25, 2026 17m

Elli from episode 65 is back to share what she wishes she'd known sooner after her 2-year ordeal that eventually resulted in several new diagnoses and surgery for MALS (median arcuate ligament…

The Long COVID Treatment Guide with Jen Curtin, MD and Charlie McCone

Apr 19, 2026 54m

Dr. Jen Curtin is the Medical Director and Co-founder of RTHM Clinic, which specializes in complex chronic conditions via their clinic, telemedicine services, Intelligence platform, medication access…

S4 Aryn on athletics, adapting and advocating for oneself

Apr 14, 2026 39m

Aryn was a serious college athlete when her POTS developed, and in this episode she shares how she has adapted and how despite having world class cardiology care for her symptoms, her diagnosis would…

Attorney Krysti Monaco on winning children's social security benefits

Apr 07, 2026 39m

Krysti Monaco helps families apply for disability benefits when their children are too disabled to work.  In this episode she describes the available programs, application process, challenges,…

S5 Cell membrane health with Dr. Melanie Stein on Mast Cell Matters with Dr. Tania Dempsey

Apr 01, 2026 52m

Dr. Melanie Stein, ND is a licensed Naturopathic Physician in Portland, Oregon and a recognized leader in Cell Membrane Therapy for the treatment of complex and chronic illness. She specializes in…

Elizabeth on her comeback and book: The Toll it Took

Mar 22, 2026 34m

Elizabeth was a teen athlete when she first became bed bound with POTS and several other conditions including narcolepsy, epilepsy and gastroparesis.  After 5 years of struggling to be heard or…

S4 Excessive sleep, fatigue and insomnia in POTS WITH Dr. Kirti Sivakoti

Mar 17, 2026 44m

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical…

Julie on the lengths she had to go to for recovery

Mar 07, 2026 45m

Julie's recovery from POTS and other serious conditions involved an epic tale of sheer determination, next-level advocacy, some unconventional treatments (which we are not endorsing: talk to YOUR…

S4 Dr. Dempsey’s cutting edge treatments (part 2) - Mast Cell Matters

Mar 01, 2026 47m

Dr. Dempsey is always looking for new therapies that may help her complex patients.  In this episode Dr. Dempsey discusses how she incorporates treatments with Methylene Blue, peptides, and the…

S4E262 Maggie on being both patient and Mental Health Therapist

Feb 25, 2026 36m

Maggie was 14 when she started passing out regularly, and she still does occasionally, but that didn't stop her from getting back to school, completing graduate work and becoming a Mental Health…

S4E277 The Dysautonomia Workbook with Joanna Behm, EDD OTR/L and Madison Thornton, OTD OTR/L

Feb 17, 2026 37m

Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT.  Together they created a…

Dr. Casey Kelley on Mast Cell Matters

Feb 10, 2026 40m

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex…

S4E284 Sophie on life after severe COVID

Feb 03, 2026 41m

Surviving severe COVID was just beginning of Sophie's health adventure.  She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that…

Attorney Nancy Cavey on disability benefits for POTS/dysautonomia

Jan 27, 2026 42m

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness.  In…

Frequently Asked Questions

How many episodes does The POTScast have?

The POTScast has published 250 episodes since July 2022, covering topics in Business, Education.

Is The POTScast still active?

The POTScast is currently highly active with new episodes weekly. Average episode length is 41m.

How do I contact The POTScast for sponsorship or guest appearances?

Sign up on Grep.FM to access contact details for The POTScast, including email and social media links.

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