Unstoppable Strides: Navigating Runner's Dystonia
Julie Bergfeld
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Join Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia.
Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.
Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.
Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.
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Recent Episodes
S2E10 Dystonia and Neuroplastic Recovery with Dr. Dave Clarke
Join us in a conversation with Dr. David Clarke, a retired Doctor of Internal Medicine and Gastroenterology, who found patients with normal labs and diagnostics never were able to resolve their…
S2E9 Thad Frye on Brainspotting
Julie and JoJo spend some time with Thad Frye, a licensed clinical social worker and brain spotting consultant who specializes in using brain spotting in his practice. In this episode, Thad describes…
S2E8 Dr. William Deihl from Doc Hypnosis
Julie sits down with Dr. William Deihl from Doc Hypnosis to discuss and dispel myths about hypnosis. Hypnosis can be used as a neuroplastic tool to help heal a variety of conditions from anxiety,…
S2E7 Chris Phelan shares his long history with dystonia, botox and dbs
Distinguished athlete Chris Phelan talks openly about his dystonia story and diagnosis. Chris has been affected for more than 10 years and has had multiple rounds of botox and dbs (deep brain…
S2E6 Lilibet Kyte shares her MS story
This episode takes a different twist as I talk with Lilibet Kyte who, at age 36, was diagnosed with Multiple Sclerosis (MS). We talk about treatments, her diagnosis, her team and a host of other…
S2E5 Casandra Oldham on moving forward
Casandra Oldham has had success in her running career that was never intended to be a running career! She shares her knowledge of neurodiverse brains and how thinking outside of the dystonia "box"…
S2E4 Kara Goucher shares her Dystonia Story
Julie, JoJo and special guest host Karrie Hamstra-Wright chat with wife, mother, NBC Track and Field Broadcaster, author, World T&F Silver medalist and 2-Time Olympian Kara Goucher. Kara shares…
S2E3 Megan Cohea Physical Therapist Tells Her Dystonia Story
Julie sits down with Megan Cohea, a physical therapist living on the East Coast. Megan has Runner's Dystonia and shares her journey, symptoms and recommendations in this conversation. Apologies for…
S2E2 Lessons in Hope, Healing and Health with Karrie Hamstra-Wright
JoJo and Julie sit down with Karrie Hamstra-Wright, Clinical Professor and Co-Director of the Applied Sports Psychology and Injury Research and Education (ASPIRE) Lab in the Department of Kinesiology…
S2E1 Randy Morton - A Vision of Hope
In this episode, JoJo and Julie talk with Runner, turned cyclist, Randy Morton about his dystonia journey through medical in-attention, gaslighting and athletic career. Randy is resilience…
S1E12 The Default Mode Network - Psychadelics and Breathwork
Default Mode Network (dmn) discussion on how to down regulate, how it might be a factor with Dystonia. What things we have tried help to down regulate the DMN. Includes references to breathwork,…
S1E11 Episode 11 with Kirsten Jackson - on DBS
We talk with Australian runner Kirsten Jackson on her progress with dystonia and DBS (Deep Brain Stimulation). Kirsten had the implant in February of 2025 and considers herself cured from dystonia…
Episode 10 with Roberta Reardon
On this episode, Julie talks with long-time dystonic runner, Roberta Reardon. We discuss modalities that are non-drug as well as how the issues first began. Roberta shares some key insights into how…
S1E9 Episode 9 - a Conversation with newly diagnosed Shannon Webb
In this episode, we talk with Shannon Webb, a newly diagnosed runner with dystonia. She shares what she has tried, where she is in her progress and what she hopes to have happen in the future. Here…
S1E8 A conversation with "Dystonic Runner" Victoria Upson
Julie and JoJo are joined by Victoria Upson in this episode to hear her journey with running and Runner's Dystonia. Victoria shares a lot about her symptoms and how her persistence have allowed her…
S1E7 Re+active PT with Bree Williamson
Julie and Joelle sit down with Bree Williamson to learn about her experience with Re+active PT. This is to share information and not to recommend any particular programs. If you are interested, the…
S1E6 Episode 6 - PRI Chat with Maria Winters
Ih this episode, Julie and JoJo chat with fellow Dystonic runner Maria Winters. Maria has successfully used the principles from the Postural Restoration Institute (PRI) to enhance her healing…
S1E5 Episode 5 - Dealing with Comments and Questions
Julie and JoJo discuss how they have managed comments, questions and reactions from other people. If you have comments or questions, we would love to hear. Support the showThe information shared in…
S1E4 The Farias - Dystonia Recovery Program
In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc. The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with…
S1E3 Focal Dystonia in Cyclists
In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us…
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