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About This Podcast
Hi everyone! My name is Mackenzie and I was diagnosed with AL amyloidosis at age 23. We don’t know the cause of this disease, but we do know that it can lead to serious and potentially life-threatening issues. This disease has changed me and my life in so many ways, and as a result, I founded Mackenzie’s Mission to join the fight against this disease.
Part of our effort is to raise awareness which, we believe, will accelerate diagnosis, enable earlier treatment, and improve patient lives. We do this in several ways, including our “All Things Amyloid” podcast. In our episodes, we will speak with patients and caregivers about their journey on a wide array of topics. We will also hear from amyloidosis experts about the medical side of this disease.
There is more hope for patients than ever before, and raising awareness around the globe is critical to improving patient lives. If you want to learn more about the work we’re doing at Mackenzie’s Mission, please visit mm713.org. Thanks for listening!
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Recent Episodes
When to Consider Discontinuing Maintenance Therapy?
Send us Fan MailHaving AL amyloidosis, a disease that at present is incurable, can be an emotional rollercoaster. Over the course of one’s journey, patients may go on treatment post-diagnosis, go off…
Physical Therapists - Be On The Lookout!
Send us Fan MailIt’s key for front-line healthcare providers to know about amyloidosis and the most common symptoms. They can play a valuable role in early suspicion, leading to early diagnosis, and…
Amyloidosis For Patients with Dr. Kevin Alexander
Send us Fan MailAll of us have seen the amazing forward progress over the last 10 years in the battle against amyloidosis – so much has changed -- from knowledge about the disease, to diagnosis,…
Why is Amyloidosis Bad for Your Kidneys?
Send us Fan MailIn this episode of All Things Amyloid, we hear from Dr. Jeffrey Zonder from the Karmanos Cancer Institute. Adapted from his video “Why is amyloidosis bad for your kidneys?” He…
An AL Patient Going Through Peritoneal Dialysis
Send us Fan MailAdvanced kidney failure can be an unfortunate reality to patients with AL amyloidosis. Physicians often discuss two paths forward - a kidney transplant and dialysis, which is often…
Keys to Making a Strong Patient-Provider Relationship
Send us Fan MailThe relationship between a patient and their provider is so important. It serves as a foundation upon which trust is built, expertise is shared, and life-impacting decisions are made.…
Amyloidosis Destroyed My Heart; Organ Transplantation Gave Me Life
Send us Fan MailAmyloidosis is a ruthless disease, attacking organs, leading them towards failure when left untreated. Fortunately there are treatments that can help slow disease progression, with…
If I Could Redo My Diagnostic Journey What Would I Do Differently?
Send us Fan MailWe all have “hindsight is 20/20” vision, and for us patients, the majority of us can look back at our own diagnostic journey and identify actions we perhaps should have done something…
The Hidden Thread: Rethinking Amyloid Diseases as One System
Send us Fan MailAmyloid diseases are often seen as separate conditions — from Alzheimer’s to certain heart or kidney disorders — but they all share a common culprit: amyloid proteins that misfold and…
Empowering Patients via the Amyloidosis Support Groups
Send us Fan MailFor over two decades, Muriel Finkel has been running the Amyloidosis Support Groups (ASG). She’s a pillar in the industry and everyone knows her name. Her rolodex of physicians is…
How a Diagnosis of Amyloidosis Has Impacted Our Family
Send us Fan MailWhen a crisis hits a family member, of course you’ll be there to support and help them however you can. Perhaps they have always been there for you, and now it’s their turn. It may…
Working with Capitol Hill for Change - You CAN Make a Difference!
Send us Fan MailOur government drafts, debates, and approves laws that govern important areas of our amyloidosis community. These laws can impact things like funding for research, patient access to…
Finding My Voice
Send us Fan MailNot everyone is wired to be outgoing and assertive. For them, finding their voice to advocate for themself may well be easy. But for others, finding their voice and confidence to…
The Power of Advocacy
Send us Fan MailIn this episode, our guest, Jenelle Murphy, is here to talk about her experience advocating for her father, Albert Sanders, who unfortunately had a long journey with ATTR wild-type…
What is the Relationship Between AL Amyloidosis and Multiple Myeloma?
Send us Fan MailIn this episode of All Things Amyloid, we hear from Dr. Giada Bianchi, hematologist at the Amyloidosis Program at Brigham & Women’s Hospital and Dana-Farber Cancer Institute.…
Relapsing - What’s Next?
Send us Fan MailWhen you have an incurable disease that has treatments available, like amyloidosis, unfortunately it does not necessarily mean there is a cure. Treatments can be effective in getting…
Isabelle: The Patient and the Advocate
Send us Fan MailIsabelle was diagnosed some 29 years ago. Struggling with symptoms, no treatments available other than being one of the earliest to have a stem cell transplant, and a new husband ……
The Systemic Amyloidoses vs Parkinson’s vs. Alzheimer’s
Send us Fan MailIn this episode of All Things Amyloid, we hear from renowned researcher Dr. Jeff Kelly from Scripps Research, pioneer in the field of amyloidosis. Current medical education on amyloid…
S1E26 When the Caregiver Becomes the Patient
Send us Fan MailWhat if you’re a caregiver for one of your parents as they live with the symptoms of a devastating disease - hereditary amyloidosis? You have to watch them deteriorate, see their life…
S1E25 To HCPs: Strengthening the Doctor-Patient Relationship With the Black Patient Community
Send us Fan MailThe doctor-patient relationship is so important to a patient’s journey, especially when dealing with a complex disease like amyloidosis. Listen to Mackenzie where she talks with Erin…
Frequently Asked Questions
All Things Amyloid has published 44 episodes since October 2024, covering topics in Health & Fitness, Medicine.
All Things Amyloid is currently highly active with new episodes every 2 weeks. Average episode length is 21m.
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