Double Rare: A Mother's Path With Two Rare Diseases

Katie Canning

English Education Health & Fitness Kids & Family Mental Health Parenting

Apple Podcasts Website RSS

Episodes 11

Avg. Duration 28m

Activity Dormant

Since May 2024

Latest Episode Jun 2025

Publishing Details

Schedule

Weekly

Format

Episodic

Hosting

feeds.acast.com

Contact & Outreach

About This Podcast

Join us on a deeply moving journey as we delve into the remarkable story of a mother's unwavering love for her son, who battles not one, but two rare diseases. Through candid conversations and heartfelt moments, listeners will gain insight into the challenges, triumphs, and resilience of a family navigating the complexities of rare medical conditions. From the initial shock of diagnosis to the daily realities of caregiving, this podcast explores the profound bond between a mother and her child, demonstrating the power of love and determination in the face of adversity. Tune in to be inspired by the courage, strength, and unwavering hope of this extraordinary duo as they navigate life's unexpected twists and turns together.

Hosted on Acast. See acast.com/privacy for more information.

Explore Statistics

English Podcasts Report Education Report Health & Fitness Report Kids & Family Report Mental Health Report Parenting Report English Education Report

Recent Episodes

S1E11 Its been a year lets update

Jun 30, 2025 30m

I am live with my fb and I am doing updates from surgeries to new therapy and we got to go to Boston Hosted on Acast. See acast.com/privacy for more information.

S1E10 All the bad things rolled in one episode for my 10th episode!

Aug 28, 2024 18m

So yea what's good without the bad? Hosted on Acast. See acast.com/privacy for more information.

S1E9 We get to go to Disney?? what??

Aug 27, 2024 15m

Talking about good things happening obviously :) I mean....vacation for a medical family? enjoy our info and our podcast? leave a review please! Hosted on Acast. See acast.com/privacy for more…

S1E8 We drove 5 hours to see a Nuero Genetic Dr to discuss UBTF

Jun 30, 2024 28m

On this episode i discuss what happened during my trip to Winston Salem as well as Carters MRI experience. Carter got to see the pulmonologist and an allergist. Hosted on Acast. See…

S1E7 DC Leukodystrophy Research Trip Update(UBTF)

Jun 27, 2024 29m

During our trip to Washington, DC for medical research related to my son's Leukodystrophy gene mutation (UBTF), we stayed at the Ronald McDonald House for accommodations. In addition to focusing on…

S1E6 Sick Policies and what's coming up

Jun 03, 2024 39m

In this Episode I will talk about our son being discharged from therapies and what appointments we have coming up Hosted on Acast. See acast.com/privacy for more information.

S1E5 A Little Life Update

May 26, 2024 28m

In this episode we will give a little life update. Stay tuned for some news! Hosted on Acast. See acast.com/privacy for more information.

S1E4 Mental health along with diagnosis

May 17, 2024 33m

On todays episode we dive into the mental health aspect behind a diagnosis Hosted on Acast. See acast.com/privacy for more information.

S1E3 Genetic Testing

May 13, 2024 27m

On this episode we will talk about how we came to find out about Carters two ultra rare diseases and what they are. Hosted on Acast. See acast.com/privacy for more information.

S1E2 Unexpected 6 month checkup

May 13, 2024 29m

On this episode we dive into what happened to start us on this medical journey. Triggers : medical procedures, CPS, Emotions, Blood Hosted on Acast. See acast.com/privacy for more information.

S1E1 Introduction

May 12, 2024 24m

Welcome to Double Rare, where we delve into the extraordinary journey of a family facing the unimaginable. I'm Katie, and in this inaugural episode, we'll embark on a deeply personal exploration of…

Frequently Asked Questions

How many episodes does Double Rare: A Mother's Path With Two Rare Diseases have?

Double Rare: A Mother's Path With Two Rare Diseases has published 11 episodes since May 2024, covering topics in Education, Health & Fitness.

Is Double Rare: A Mother's Path With Two Rare Diseases still active?

Double Rare: A Mother's Path With Two Rare Diseases is currently dormant with new episodes weekly. Average episode length is 28m.

How do I contact Double Rare: A Mother's Path With Two Rare Diseases for sponsorship or guest appearances?

Sign up on Grep.FM to access contact details for Double Rare: A Mother's Path With Two Rare Diseases, including email and social media links.

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