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About This Podcast
The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry.
Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.
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Recent Episodes
S1E15 A Rare Story of Love & Loss
Donna Strauss's journey with Fabry disease reveals how resilience, hope, and community can transform despair into purpose. After losing her husband to this rare disease, Donna shares insights on…
S1E14 Jerry Walter's Life with Fabry: Resilience in Action
Learn about Jerry Walter's extraordinary journey living with Fabry disease, including his experiences with cardiac complications, a heart transplant, and his inspiring perspective on resilience and…
S1E13 Fabry & The Kidneys with Dr. Michael West
In this episode, we're joined by Dr. Michael West, a leading nephrologist, to explore the impact of Fabry disease on kidney health. We discuss the early signs of kidney involvement, the importance of…
S1E12 Intentional Living and Awareness with Linda Quaranta
In this episode, we are joined by Linda Quaranta - a licensed EMDR therapist who also happens to be living with Fabry disease herself.What you'll discover:*How to find purpose while managing chronic…
S1E11 A Modern Era in Cardiac Care: Fabry Disease, AI, & the Power of Partnership with Dr. John Jefferies
In this conversation, Dr. John Jeffries discusses the complexities of Fabry disease and the importance of a strong patient-physician partnership in managing cardiac care. He emphasizes the role of…
S1E10 Fabry and Mental Health with Christine Leighland
How does Fabry disease impact mental health? What role do anxiety, pain management, and emotional well-being play in the patient journey? Julia Alton and Christine Leighland explore these questions,…
S2E1 Decision Fatigue with Jennifer Siedman
Julia Alton and Jennifer Siedman delve into the complexities of decision-making, particularly in the context of chronic illness and rare diseases. They explore the concept of decision fatigue, the…
S1E8 The Critical Role of Biomarkers in Rare Diseases with Christiane Auray-Blais
This conversation delves into the complexities of Fabry disease, a rare lysosomal storage disorder, and the critical role of biomarkers, particularly Lysogb3, in diagnosis and treatment monitoring.…
S1 Fabrycast Trailer
S1E7 Fabry + Sleep with Dr. Robert Hopkin
Dr. Robert Hopkin joins us for an in-depth discussion about the relationship between Fabry & sleep.
S1E6 Fabry & Heart Health with Dr. Gavin Oudit
On this episode of the FabryCast it is our pleasure to welcome Dr. Gavin Oudit, a distinguished professor, staff cardiologist, & clinician scientist at the University Of Alberta. With his…
S1E5 Grieving The Life You Didn’t Have with Sam Wu
Caregiver, On-call Chaplain, & Counsellor, we are honored to be joined by Sam Wu for this episode of the FabryCast. Sam believes that no one should walk alone, especially when they are feeling…
S1E4 Behind The Lab Coat: Fabry Testing & Why It Is So Important with Kaye LeMoine
On this episode we are joined by another hero in the community, National Program Manager at the Canadian Fabry Disease Initiative, Kaye LeMoine. With an immense amount of compassion & knowledge,…
S1E3 Fabry Care with a Functional Perspective with Dr. Seema Kanwal
On this episode of the FabryCast: Vancouver based Naturopath & CFA Board Member, the always amazing Dr. Seema Kanwal, guides listeners towards optimal health via perspective, encouragement, &…
S1E2 Ask A Doctor Anything with Dr. Aneal Khan
On this episode of the FabryCast we answer questions that have come in from the patient community. Dr. Aneal Khan thoughtfully gives insight to the questions listed below:Is Fabry an inflammatory…
S1E1 Fabry 101 with Dawn Laney
What is Fabry Disease and how is it passed on in families? Learn about the symptoms patients experience, what parts of the body are affected, and when symptoms usually begin.Have you heard people…
Frequently Asked Questions
FabryCast has published 16 episodes since January 2024, covering topics in Health & Fitness.
FabryCast is currently highly active with new episodes quarterly. Average episode length is 35m.
Sign up on Grep.FM to access contact details for FabryCast, including email and social media links.
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