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Recent Episodes
S5E2 Sticky blood, teddies and teens — Talking to children about their bleeding disorder
When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s…
S5E1 Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard
The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life.In this episode, members of Local families with bleeding…
S4E9 Banana sap, mangos and factor IX — a Ugandan haemophilia B journey
Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as…
S4E8 Quality of life in the balance: Helen Tate on living with Factor V deficiency
Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million…
S4E7 Looking back on Terence's life: Haemophilia then and now, with Kate Khair
Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care…
S4E6 Reflections on a life with severe haemophilia. Part 6: Decision-making and teamwork
The final part of our mini-series featuring Terence O'Rourke, in which he reflects on living with severe haemophilia A.In this episode, Terence discusses his approach to making decisions about…
S4E5 Reflections on a life with severe haemophilia. Part 5: Treatment impacts, life changes and hepatitis C
In part 5 of Terence O'Rourke's story, he again reflects on his working life and how this was impacted by both his haemophilia and its treatment.He discusses his approach to and choices about…
S4E4 Reflections on a life with severe haemophilia. Part 4: The arrival of Factor VIII and an evolving career
In part 4 of our mini-series in conversation with Terence O'Rourke, he reflects on changes in treatment for haemophilia and the arrival of Factor VIII. Terence describes some of the prejudice he…
S4E3 Reflections on a life with severe haemophilia. Part 3: Work, study and challenging treatment decisions
In the third part of our conversation, Terence O’Rourke looks back on his young adulthood in the late 1950s and early 1960s, starting work in an architect’s office and becoming a student. This was…
S4E2 Reflections on a life with severe haemophilia. Part 2: Education and dreams of the future
We rejoin Terence O'Rourke to as he reflects on growing up with haemophilia, not being able to go to school, his education, and the impact of this on his life. Now in his 80s, Terence also looks back…
S4E1 Reflections on a life with severe haemophilia: In conversation with Terence O ’ Rourke
In the first part of a six-part mini-series, Terence O’Rourke looks back on his childhood memories of living with severe haemophilia, including his education and experience of treatment. Terence, who…
S3E2 In conversation with Kate Khair: reflecting on a lifetime's achievement in haemophilia and bleeding disorders
In this episode of Haemcast, we speak to our very own Dr Kate Khair following her Lifetime Achievement award at EAHAD 2024. Tune in to hear about Kate's journet into nursing, the first patient she…
S3E1 Pathway to Cures; the venture philanthropy fund focused on transformative treatments for inheritable blood disorders ft. Len Valentino and Teri Willey
In this episode, host Luke Pembroke (Director of Community Engagement, Haemnet) sat down with Len Valentino (P2C Chief Executive Officer; and NBDF President & CEO) and Teri Willey (P2C Managing…
S2E9 "Keep speaking their names. Keep remembering them." - Commemorating World AIDS Day 2023 ft. Mark Ward, LGBT Ambassador,The Haemophilia Society UK
In this episode we commemorate World AIDS Day 2023. Host, Dr Kate Khair is joined by contaminated blood scandal campaigner and The Haemophilia Society UK's LGBT Ambassador to discuss the impact HIV…
S2E8 Von Willebrand what?... Disease? Disorder? Dismissed? - featuring community advocates Sunny Maini & Hannah Yarnall, The UK Haemophilia Society
In this episode, Director of Community Engagement, Luke Pembroke, and Director of Research, Kate Khair spoke with community advocates Sunny Maini and Hannah Yarnalll. Sunny and Hannah share their…
S2E7 Psychologist Sylvia von Mackensen shares how her leap from sick buildings led her to become the guru of quality of life in haemophilia
From the development of standardised tools, their benefits and limitations, through to the challenges and changes we face in assessing quality of life for people with haemophilia and bleeding…
S2E6 The Qualitative Revolution has Begun | Creative Qualitative Research feat. Dr Rich Gorman, Social Scientist at at Brighton and Sussex Medical School
Qualitative research is increasingly challenged to think creatively and critically about how accounts of lived experience might be collected, curated, and shared. Historically it could be said that…
S2E5 What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis
They say old age isn't so bad when you consider the alternative... In this episode, host Luke Pembroke (Haemnet's Director of Community Engagement) is joined by community members Dr William McKeown…
S2E4 International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF
In this International Women's Day episode of Haemcast, two influential women leaders in the community, host Dr Kate Khair and Dawn Rotellini of the National Hemophilia Foundation (USA) discuss the…
S2E3 Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation
"Shared decision making" has quickly become the new phrase bandied about at event and conferences within the haemophilia community. But what does shared decision making in haemophilia and bleeding…
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Haemcast has published 39 episodes since January 2021, covering topics in Health & Fitness, Medicine.
Haemcast is currently highly active with new episodes monthly. Average episode length is 29m.
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