I'm Aware That I'm Rare: the phaware® podcast
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Recent Episodes
S10E34 Episode 576 - Karen Sawyer
PH Tried to Isolate Her. She Turned Loneliness into a Lifeline for Others Pulmonary hypertension nearly stole Karen Sawyer's sense of self. Instead, Karen rebuilt it through advocacy, education, and…
S10E33 Episode 575 - Carol Stokley
A Silent Blood Clot, a 10-Hour Surgery, and a Second Chance at Life Canadian CTEPH patient, Carol Stokley was healthy, active, and unstoppable, until the day she couldn't breathe. After months of…
S10E32 Episode 574 - Jenny Yang, MD
From "Untreatable" to Life-Changing: The New Era of CTEPH Care What happens when patients are told everything looks "normal" but they still can't breathe? Dr. Jenny Yang explains how new testing and…
S10E31 Episode 573 - Eric Borstein
Why "The Walking Guy" Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive…
S10E30 Episode 572 - Nicole Dempsey
Don't Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile.…
S10E29 Episode 571 - Florin Dumitrescu
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and…
S10E28 Episode 570 - Terrie Keplinger
She'd Never Been Sick - Until a Rare Disease Hit Like a Brick Wall Terri Keplinger went from healthy and unstoppable to fighting for breath after unexplained swelling and a shocking ER visit led to a…
S10E27 Episode 569 - Rey Adam Rodriguez
From Newlywed to Newly Diagnosed Six months after saying "I do," Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey shares his whirlwind journey through misdiagnosis, a new baby,…
S10E26 Episode 568 - Sherry Rouse
She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease At 30, Sherry Rouse went in for a breast cancer screening. What doctors found instead wasn't cancer, but was something far rarer,…
S10E25 Episode 567 - Dr. Nicholas Kolaitis
The Insurance Plan You Never Knew You Needed What does a lung transplant have in common with car insurance? More than you'd think. Dr. Nicholas Kolaitis shares why seeing a transplant team early,…
S10E24 Episode 566 - Lala Juarez
The Most Dangerous Phrase in Rare Disease: "You Look Fine." Diagnosed with idiopathic pulmonary arterial hypertension in her early 20s after years of being dismissed, Lala Juarez knows what it's like…
S10E23 Episode 565 - Angela Brown
The Daily Discipline of PH: Living by the Liter and Label Most people don't count every sip of water or every grain of salt. Angela Brown does. This episode dives into the daily discipline required…
S10E22 Episode 564 - Neal McDermott and Steve Mathai, MD
Two Rare Diagnoses, One Powerful Partnership Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersection of two rare diseases requires trust, early action, and…
S10E15 Episode 563 - Khushboo Goel, MD
The Hidden Daily Battles of Pulmonary Hypertension Patients Behind the clinical charts and heart catheterizations lies a world of emotional, financial, and physical challenges that PH patients face…
S10E20 Episode 562 - Ripla Arora, PhD
Why the Clues to Pulmonary Hypertension Start Before Birth When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene held secrets to life-threatening lung diseases. Now,…
S10E19 Episode 561 - Jeffrey Whitsett, MD
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today's…
S10E18 Episode 560 - Luke Stockdale
From Knee Pain to Gene Discovery: One Family's Unexpected Diagnosis What started as routine investigations into hereditary knee problems turned into a life-altering discovery for Luke Stockdale and…
S10E17 Episode 559 - Drs. Matina Prapa and Olivier Danhaive
How a Global Team Is Rewriting the TBX4 Playbook Rare diseases thrive in isolation. TBX4Life is changing that. In this episode, Drs. Prapa and Danhaive share how international collaboration is…
S10E16 Episode 558 - Anton Morkin
One Dad's Mission to Cure His Son's Genetic Disease When Anton Morkin's son was diagnosed with "idiopathic" pulmonary hypertension, he refused to accept "no known cause" as an answer. What followed…
S10E557 Episode 557 - Gaurav Choudhary, MD
How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn't require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world…
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I'm Aware That I'm Rare: the phaware® podcast has published 582 episodes since September 2016, covering topics in Health & Fitness, Medicine.
I'm Aware That I'm Rare: the phaware® podcast is currently highly active with new episodes weekly. Average episode length is 8m.
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