Make Visible: Chronic Illness Explored
Visible with Emily Kate Stephens
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About This Podcast
Shining a light on invisible illness.
Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive into the science of energy-limiting, chronic illness, whilst providing patients, caregivers and medical professionals with practical tools to diagnose, understand and manage their conditions.
From pacing to supplements, repurposed drugs to biomarkers, therapies to advocacy groups, we share the work that is being done for and by the community, helping patients navigate their symptoms, emotions and lives.
Join us every two weeks.
To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic illness, visit our website at:
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Recent Episodes
S1E35 #35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi
SCIENCE: What if a small, non-invasive device could help regulate your nervous system, reduce inflammation, improve cognitive function, and support recovery from chronic illness? Dr Elisabetta…
S1E34 #34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist
STRATEGIES: Physical rehabilitation for chronic pain conditions. If you live with fibromyalgia, ME/CFS, EDS or chronic pain, you've likely heard that exercise may help. You've also probably learned,…
S1E33 #33 Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years with Dr Lucy Foulkes
STORIES: Undiagnosed Hypermobile Ehlers-Danlos Syndrome (hEDS) | Chronic Pain, Diagnosis & Living with Complex Chronic Illness For 23 years, Dr Lucy Foulkes has lived with chronic pain,…
S1E32 #32 Hidden Virus, Immune Exhaustion & the Brain: Long Covid, ME/CFS and post-viral illness with Dr Avindra Nath (NIH)
SCIENCE: Long Covid | ME/CFS | Neuroinflammation | Clinical Trials What happens to the brain when a virus takes hold and why do some people never fully recover? Dr Avindra Nath has spent his career…
S1E31 #31 POTS: Symptoms, understanding, and management with Dr Tae Chung
STRATEGIES: Understanding Postural Orthostatic Tachycardia Syndrome (POTS) - Practical Strategies for Diagnosis and Treatment “80- 90% of POTS patients are disabled to a certain extent - people who…
S1E30 #30 Navigating medical appointments with Dr Alba Azola
STRATEGIES: How do you navigate medical appointments when you’re living with a complex chronic illness? Too often, patients with energy-limiting conditions are told there’s “nothing to be done.” Many…
S1E29 #29 Long Covid: what has six years taught us?
SCIENCE: Long Covid awareness, understanding and research. Long Covid Awareness Day (15th March 2026) marks six years since the COVID-19 pandemic unleashed its long tail of Long Covid on millions…
S1E28 #28 From Olympic hopeful to Long Covid: Oonagh Cousins’ story
STORIES: Oonagh Cousins - Olympic Hopeful to Long Covid Advocate When professional rower Oonagh Cousins was pre-selected for the Tokyo 2020 Olympic Games, her dream was within reach. But when…
S1E27 #27 Unlocking the strategies for deep sleep with David Joffe
Sleep strategies for Long Covid, insomnia, and chronic illness When you’re living with a complex chronic condition like Long Covid, sleep can feel like the one thing your body needs most… and the one…
S1E26 #26 The truth about exercise & pacing in ME/CFS, Long Covid & POTS with Todd Davenport
Why can exercise cause post-exertional malaise (PEM) in complex chronic illnesses like ME/CFS and Long Covid, and how do we avoid the crashes? If you experience a crash after a period of exertion, if…
S1E25 #25 You are not alone: navigating post-holiday fatigue, grief and acceptance in chronic illness. Gez Medinger & Emily Kate Stephens
Welcome back to Make Visible. For those living with chronic illness or invisible illness, the New Year rarely brings a “new you” — and that can be especially hard after the emotional and physical…
S1E24 #24 Ehlers Danlos Syndrome & Orthostatic Intolerance in Chronic Fatigue conditions with Dr Peter Rowe
Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions. An expert in orthostatic intolerance (OI), which is prevalent in…
S1E23 #23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney
Amy Mooney’s aim is to improve the quality of life for her patients. She is an occupational therapist specialising in the treatment of conditions that cause post-exertional malaise (PEM) and their…
S1E22 #22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Dr. Kevin Tracey is a pioneer in understanding the molecular basis of inflammation, and identifying the way in which neurons control the immune system via the Vagus Nerve. A neurosurgeon, scientist…
S1E21 #21 Living life with energy-limiting conditions - Personal wins & perspective, with Gez Medinger & Emily Kate Stephens
In a change to our usual format, this week Emily Kate Stephens sits down with fellow journalist, podcaster and chronic illness sufferer, Gez Medinger to explore their personal anecdotes and discuss…
S1E20 #20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Bateman Horne Center internist and paediatrician, Dr Melanie Hoppers, has always been driven to approach her patients’ treatment with a holistic strategy, combining first line medicines with…
S1E19 #19 Female hormones and the immune system, with Abigail Goodship
Analysis of wearable data gathered from the Visible app found that symptoms in Long Covid and ME/CFS fluctuated considerably in-line with the menstrual cycle, in a new study from Imperial College…
S1E18 #18 Leading research, delivering hope: The Open Medicine Foundation’s mission with Linda Tannenbaum
The Open Medicine Foundation is the world’s largest non-profit aimed at diagnosing, treating and preventing complex chronic disease. This week, founder and CEO Linda Tannenbaum joins Emily Kate…
S1E17 #17 PEM: measuring the threshold and understanding the cause with Dr. Rob Wüst
What is the threshold over which PEM is induced in chronic illness? This is a hugely important question for sufferers, and one for which Rob Wüst is trying to find an answer. Assistant Professor in…
S1E16 #16 Why are women more susceptible to complex illness? Predicting chronic conditions with Michal Caspi Tal PhD
This week’s episode takes us on an exploration of the exciting work coming out of M.I.T’s Biological Engineering teams into understanding infection-associated illnesses and the emerging field of…
Frequently Asked Questions
Make Visible: Chronic Illness Explored has published 36 episodes since September 2024, covering topics in Health & Fitness, Medicine.
Make Visible: Chronic Illness Explored is currently highly active with new episodes every 2 weeks. Average episode length is 52m.
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