MDA Quest Podcast
Muscular Dystrophy Association
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Recent Episodes
62: Episode 61 - Pizazz, Purpose, and Periodic Paralysis: How Cienna Ditri Turns Lived Experience into Advocacy
In this Quest Podcast episode, we chat with advocate, social media influencer, and President of the Periodic Paralysis Association (PPA), Cienna Ditri, who lives with periodic paralysis. Cienna…
61: Episode 60 - Fashion for Every Body: Izzy Camilleri on Style, Function, and Inclusion
In this Quest Podcast episode, we chat with internationally recognized fashion designer Izzy Camilleri, a true pioneer in adaptive fashion. She shares how her successful career in high-end fashion…
60: Episode 59 - Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles
In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life,…
59: Episode 58 - Wrapping up 2025 with Ira and Lily
In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Lily S. and Ira Walker. Lily is a dedicated advocate finishing her first year as a National…
58: Episode 57 - Voices of Inclusion: Celebrating NDEAM with Disability:IN
October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, the Executive…
57: Episode 56 - Precision Medicine: Mapping the Genetic Code for New Treatments
In this Quest Podcast episode, we chat with clinicians, Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, and the Interim Chief Research Officer of the Muscular Dystrophy Association, Dr. Angela Lek.…
56: Episode 55 - Unpacking Disability Pride: Voices from the MDA Community
In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to…
55: Episode 54 - Service Dogs, Inc. - Paws with a Purpose
In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs, Inc. in 1988 on the…
54: Episode 53 - Invisible People: Making the Rare Seen
In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create…
53: Episode 52 - Defending Medicaid with the MDA Advocacy Team
In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most recent updates and…
52: Episode 51 - Finding Joy in the Midst of Change
In this Quest Podcast episode, we chat with MDA Ambassador Jess Westman about embracing individuality and finding joy in our lives as paths and priorities change. The activist, actor, author, and…
51: Episode 50 - PJ's Protocol: A Lifesaving Procedure Fueled by Love
In this Quest Podcast episode, we chat with PJ’s father, Brian Nicholoff, Director of Patient Access at the Little Hercules Foundation, Amy Aikens and emeritus professor of Pediatrics and Neurology,…
50: Episode 49 - Navigating Romance with MDA Ambassadors
In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a disability advocate…
49: Episode 48 - Living with intention and creating a more beautiful life with Amber Bosselman
In this Quest Podcast episode, we chat with certified Life Coach who lives with Spinal Muscular Atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with…
48: Episode 47 - Wrapping Up 2024 with Leah and Ira
In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate that feels it is important to advocate for…
47: Episode 46 - Creating Beauty from your Dreams with Shakiira Rahaman
In this Quest Podcast episode, we chat with the Kira Cosmetics founder and entrepreneur, who lives with muscular dystrophy. Shakiira Rahaman, who founded her make-up line in 2019 after a life…
46: Special Edition - National Disability Employment Awareness Month (NDEAM) Panel for Jobseekers and Employers
No show notes for this episode.Transcript
45: Episode 45 - Making Space and Creating Pathways with Keely Cat-Wells
In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and…
44: Episode 44 - Voting Rights and Accessibility
In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent…
43: Episode 43 - Disrupting the Narrative
In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio…
Frequently Asked Questions
MDA Quest Podcast has published 62 episodes since June 2021, covering topics in Documentary, Education.
MDA Quest Podcast is currently highly active with new episodes monthly. Average episode length is 46m.
Sign up on Grep.FM to access contact details for MDA Quest Podcast, including email and social media links.
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