RARE/D Conversations

RARE/D Manchester

English Health & Fitness Science Social Sciences Society & Culture

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Episodes 14

Avg. Duration 43m

Activity Dormant

Since Dec 2019

Latest Episode Feb 2025

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Schedule

Monthly

Format

Serial

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feeds.buzzsprout.com

About This Podcast

Conversations started by The Whitworth Group

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Recent Episodes

RARE COMEDY - For Rare Disease Day 2025

Feb 28, 2025 36m

Welcome to this very special episode of our RARE/D conversations podcast, where we are celebrating Rare Disease Day 2025 and talking all about comedy! In our ‘Rare Comedy’ podcast we are joined by…

S1 SPECIAL EVENT - CONVERSATIONS ABOUT MND

Apr 13, 2022 1h 2m Bonus

A special bonus episode with conversation about genomic testing considerations in Motor Neurone Disease. This was recorded over Zoom with a live audience to support all of the activities happening…

S1 SPECIAL EVENT (pt2) - JUST HOW RARE IS RARE CANCER?

Mar 25, 2021 53m Bonus

PART 2 of a Rare Cancer special.A very special BONUS EPISODE, made with the amazing support from the GMSA - this was recorded over Zoom with a live audience to support all of the activities happening…

S1 SPECIAL EVENT (pt1) - JUST HOW RARE IS RARE CANCER?

Mar 25, 2021 40m Bonus

PART 1 of a Rare Cancer special.A very special BONUS EPISODE, made with the amazing support from the GMSA - this was recorded over Zoom with a live audience to support all of the activities happening…

S1E10 S1/EP10 - HOW RARE IS YOUR BABY?

Mar 03, 2021 49m

In the final scheduled episode of Series 1, we talk to Professor Rebecca Bennett, Professor Kevin Southern, and our very own Dr. Fiona Ulph about genetic testing and the choices that parents are…

S1E9 S1/EP9 - RARE COVID TIMES - MEDITERRANEAN

Sep 21, 2020 47m

Continuing the change from our usual podcast recordings, we talk over Zoom with special guest Dorica Dan, with additional guest listeners, Dr. Ovidiu Damian, and our very own Dr. Ramona Moldovan.Not…

S1E8 S1/EP8 - RARE COVID TIMES - ROMANIA

Jul 29, 2020 45m

S1E7 S1/EP7 - RARE COVID TIMES - INDIA

Jun 17, 2020 43m

Continuing the change from our usual podcast recordings, we talk over Zoom with Prof Shubha Phadke in India, with additional guest listeners, Dr Charu Deshpande, Mr Suyong Sathe, and our very own Dr…

S1E6 S1/EP6 - RARE COVID TIMES - CHINA

Apr 29, 2020 42m

In a change from our usual podcast recordings, we talk over Zoom with Prof Jie Ding of Peking University First Hospital, supported by guest listener Prof Tao Wang in the conversation and with…

S1E5 S1/EP5 - JUST HOW RARE ARE YOU?

Mar 31, 2020 58m

A very special live recording at The Whitworth Art Gallery in Manchester where our group first met - we chat about the human genome with Genetic Counsellor Sasha Henriques and Dr George Burghel from…

S1E4 S1/EP4 - HOW COULD RARE GENE DISCOVERIES/DIAGNOSIS IMPACT ON YOUR LIFE?

Mar 01, 2020 44m

In our 4th episode we chat to Professor Dian Donnai, Sally Hatton, and Professor Andrew Read about the many topics around the scientific discoveries the importance of thinking about the people they…

S1E3 S1/EP3 - DISCUSSIONS ABOUT HD WITHIN FAMILIES AND THE CHOICES WE MAKE IN LIFE

Jan 31, 2020 30m

In a very different episode, we chat with our very own Jay Roche and his wife Sarah about the family's long connection with Manchester Genetics Department and how different things have shaped their…

S1E2 S1/EP2 - ETHICAL DILEMMAS IN GENOMIC TESTING: RARE OR NOT SO RARE?

Dec 29, 2019 43m

In our second episode we talk to Dr John McDermott, Professor Margaret Brazier, Rachel Mahood, and Rachel Corry about ethical dilemmas in clinical trials and first Point of Care Genomic test to be…

S1E1 S1/EP1 - RARE OPPORTUNITIES AND HOW WILL THE 100,000 GENOME PROJECT CHANGE HEALTH CARE?

Dec 29, 2019 32m

In our first (pilot) episode we talk with Professor Bill Newman from Manchester about Rare opportunities and how will the 100, 000 Genomes Project change health care?Professor Bill Newman is…

Frequently Asked Questions

How many episodes does RARE/D Conversations have?

RARE/D Conversations has published 14 episodes since December 2019, covering topics in Health & Fitness, Science.

Is RARE/D Conversations still active?

RARE/D Conversations is currently dormant with new episodes monthly. Average episode length is 43m.