The Starry-Eyed Podcast®
Williams Syndrome Association
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About This Podcast
Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
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Recent Episodes
Ep 96 - Awareness Month & Acting with Kara Jackson
Happy Williams Syndrome Awareness Month!! We're kicking off this great month with the wonderful Kara Jackson. She joins Jen and Brendan to discuss her love of acting and her upcoming production of…
Ep 95 - Awareness Month Prep with Brendan and Joel
It's a quickie episode this week as Brendan (who is literally tiptoeing through the tulips) and Joel prepare for May - which is, of course, Williams Syndrome Awareness Month. You can find resources…
Ep 94 - The Dream Team with Amy Berg
This week we're joined by Amy Berg from just outside Philly on the Jersey side. Amy is an OG person with WS (diagnosed before there was genetic testing) and has seen this community grow and change…
Ep 93 - Part 2 with Dr. Beth Kozel and Dr. Jessica Bowman
This week is part 2 of our chat with Dr. Beth Kozel and Dr. Jessica Bowman from Nationwide Children's in Ohio. Together with Jen and Brendan (and Producer Joel sneaks in there too), they discuss the…
Ep 92 - Hydration! with Dr. Beth Kozel and Dr. Jessica Bowman
A - B - H. A - Always, B - Be, H - Hydrated. Always be hydrated! Always be hydrated!! If you thought water was just this thing that happens to make up around 60% of your body and 70% of the Earth's…
Ep 91 - Sláinte! with Erin Oneill
Sláinte! (pronounced "slawn-cha") is Gaelic for "health," which is a great way to greet our guest this week! Erin Oneill joins us from Edinburgh, Scotland, to talk about her journey to discover her…
Ep 90 - Psychology & Siblings with Dr. Carolyn Shivers
Sometimes the stars align and a person comes along and you didn't know you were supposed to connect, but once you did you instantly knew that something big was going to happen. This is the case with…
Ep 89 - Convention: Full Steam Ahead! with Sarah Schaefer
With 112 days before the start of the 2026 WSA Convention, Sarah Schaefer joins the pod to update everyone on how preparation is going. From Early Bird Registration to Scholarship cutoff, there's a…
Ep 88 - Teen Social Club with Bennett Liestman & Stella Keeton
As we launch our 3rd year of podcasting stories from the WS community, we're joined by Pod-teens Bennett and Stella. Together they share stories from their time at Camp – which, if you're a kid or…
Ep 87 - Three Headed Camp Monster! with Emma Thomas, Nick Conley, & Nirakar Thakur
Spring is beginning to...well...spring, so now our thoughts turn to Camp WSA! In this episode, we're joined by our fabulous leadership team for Camp WSA: Emma Thomas, Nick Conley, and Nirakar Thakur.…
Ep 86 - Tornado Cologne with Brett Menna
Consider this episode a palate cleanser from recent heavy subjects as we are joined by Brett Menna! He joins Brendan and Producer Joel (Jen was otherwise engaged) about figuring out what's next after…
Ep 85 - Controlling What You Can Control with Jess Iverson
In this episode, we’re joined by Jess Iverson, a parent, former attorney, and soon-to-be licensed therapist. Jess walks us through practical ways to navigate loss and grief, especially in moments…
Ep 84 - It's Okay to Not be Okay with Martha Maier and Jeff Isensee
There’s no easy way to begin this episode. Over the past few weeks, the Williams syndrome community has experienced several losses, and regardless of the circumstances, it has left many of us feeling…
Ep 83 - Passion Meets Purpose with Paola Martinez
This week Paola Martinez joins the Two-Timers Club! She recently became the WSA’s new Development Manager, and she joins Brendan and Jen to talk about turning personal connection into powerful…
Ep 82 - It Keeps You Runnin' with Holden Cammarata
This episode's guest did not just jog into the Williams syndrome community. He kept going. And going. And going. Holden Cammarata is a Georgia Tech student studying rocket science, because apparently…
Ep 81 - Totally Birchin with the Birch Sisters
This week the fabulous Birch Sisters (Victoria and Alexandra) return to join the "2-timers Club!" Amongst the silly chaos of friends catching up, Brendan and Joel flip on Jen and interview her and…
Ep 80 - Signing the Times with Kylie Stenger
Ep 80 - Signing the Times with Kylie Stenger This week we celebrate episode 80 with Kylie Stenger, a young woman with a lovely gift of gab - with her hands! Having started signing at an early age,…
Ep 79 - Making a Home with Martha Maier, Jeff Isensee, and Phil Isensee
Happy New Year from your favorite pod fam! While Jen is getting an internet upgrade, Producer Joel joins Brendan to hear about the challenges that come with trying to find proper living arrangements…
Ep 78 - Closing it out with Sophia Napoli
Queen Crouton herself has returned! This week we're joined by our good friend Sophia Napoli. If you think she's become more tame since her last appearance - not a chance! Her passion and desire to…
Ep 77 - All In & No Pay with Darcie Wolfe
This week the pod is joined by volunteer extraordinaire Darcie Wolfe. She took a chance on volunteering at Camp Blue Skies with her husband's cousin and has become a fixture of our adult community.…
Frequently Asked Questions
The Starry-Eyed Podcast® has published 99 episodes since February 2023, covering topics in Kids & Family, Parenting.
The Starry-Eyed Podcast® is currently highly active with new episodes weekly. Average episode length is 45m.
Sign up on Grep.FM to access contact details for The Starry-Eyed Podcast®, including email and social media links.
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