The Beautifully Rare Podcast by Sam and Brynne Bish

Episodes 5

Avg. Duration 1h

Activity Dormant

Since Oct 2024

Latest Episode Jan 2025

Publishing Details

Schedule

Monthly

Format

Episodic

Hosting

media.rss.com

About This Podcast

Sam and Brynne live a Beautifully Rare life. Join them as they discuss their experiences living with complex CHD, SMA, and other unique challenges they have had to navigate as a family. If you are looking to discover a life beyond the barriers that life gives you to access one of joy and peace, this podcast is for you. They will discuss what it's like living with SMA, their journey with their son Cillian who is living with half of a heart, their faith, parenting, inter-able relationships, and everything in-between.

Podcasting 2.0 Features

episode license medium

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Recent Episodes

Episode 5: 3 Things to Know and Do After a Brain Injury Diagnosis

Jan 27, 2025 57m

Getting a brain injury diagnosis for your child can be terrifying. How much can they reclaim? And more importantly, what do we need to do to optimize their recovery? In Episode 5, Sam and Brynne…

Episode 4: Cillian's Story (Part 2)

Dec 31, 2024 1h 28m

Explore part 2 of Cillian's story where we chronicle our darkest days while he experiences 4 open heart surgeries, major cardiac arrest, significant brain injury, and our path down recovery.The…

Episode 3: Cillian's Story (Part 1)

Nov 18, 2024 1h 4m

Join us for Part 1 of Cillian's story as we discuss what it was like receiving a life changing diagnosis, how the impossible was made possible journeying to Boston Children’s, and helpful advice for…

Episode 2: Blessing in Disguise

Nov 04, 2024 43m

Curious about Brynne’s experiences in living with a neurological disease? Join Sam and Brynne on episode 2 of “The Beautifully Rare Life” Podcast where they will be talking about how she was…

Episode 1: New Beginnings

Oct 19, 2024 46m

In Episode 1, “New Beginnings” we interview Sam and learn about how his time in the Marines helped shape his mentality to help lead his family through a year long ICU, his path to sobriety, being an…